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Hello everyone, I'm posting here to introduce myself, along with my wife, who has recently been diagnosed with CLL/SLL, following a punch biopsy on a lump on the side of her breast. Right now, despite having had an initial consultation with a Consultant...
Hi I am 65 and have recently been diagnosed with CLL. Luckily, I don't have any symptoms and I am physically ok. All very relatives and friends have a positive outlook but emotionally I am all over the place. I feel angry, cancer is the first thing...
Has anyone ever received a letter from Macmillan cancer support, saying that "your case is now closed" "unfortunately as you have not received treatment at one of our hospitals within the last 6 mths,we are unable to assist you on this occasion ". I sent...
Hello everyone I've just had my six months phone chat about my NH Lymphoma,I think I've been on watch and wait for about two years,with very little change to my health except my tummy,I have a poor appetite and when I do eat I'm bloated and feel uncomfortable...
I'm a 61-year-old country boy, born, raised, living and working in rural Kent. I was diagnosed with CLL in June 24 and my prognosis in September showed that I have a TP53 gene mutation. I work the land for a living, currently being the estate manager...
I’ve been diagnosed with CLL for a while now and am currently well. The problem is that I don’t really deal well with the uncertainty of the situation - and I get angry about the situation which is not how I normally react. I’ve been reading some of the...
Currently I am on 'watch and wait'. It would be fair to say that I have had a couple of 'wobbles' but I can't fault the level of attention I am getting and the quality of my local surgery and hospital. Given the comparative rarity of HCL it is proving...
Hi. I live in the outskirts of Edinburgh and was diagnosed with chronic lyphocytic leukaemia 8 years ago following a blood tests for an unrelated issue. I have been on 'watch and wait' during this time and for the last 3 years have been in a virtual clinic...
Greetings, I'm living with Small Cell Lymphocytic Lymphoma, Stage Three. I was diagnosed in 2019, so I have passed the five-year survival mark, whatever that means. It is a diagnosis that my oncologist euphemistically refers to as "Indolent" and is...
Hello, Is anyone else with early stage CLL experiencing severe swelling of their under arm lymph nodes, a few days after Covid and Flu vaccinations? They are approximately the size of half an avocado and very tender. Thankfully they go down after...
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