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Hi, my brother has just been diagnosed with CLL. I’m here to find out more so I can support him. He isn’t coping well at all and has MH issues already. He’s has scans etc which confirmed the diagnosis but the appt for consultation to discuss treatment...
I'm 70 and was diagnosed with CLL about 18 months ago. I have been on watch and wait since being diagnosed, whilst also being treated separately for prostate issues. Having just finished a month's radiotherapy for prostate cancer, I now have a meeting...
Hi, I finished 15months of immunotherapy in December and am going for my follow up appointment in the morning. I will hopefully know where I stand at the moment. I’m feeling really low and tearful. I’m also on the tail end of a cold so that’s not...
Hello. I’m new to this group. I finally navigated around this site and found the correct group for leukaemia. I was diagnosed last July. Watch and wait game. However it has become active and I have enlarged lymph nodes in both sides of my neck. Also a...
Hi to all, I was diagnosed with CLL in 2014. On watch and wait up to 6 yrs ago. Developed mouth cancer and CLL also kicked off. so all been a bit manic over the last few years. Re CLL I’ve had chemotherapy then went on to have 15months of immunotherapy...
What is the best treatment for CLL, I’m unsure what treatment to have. Thanks
Hello all, I was hoping to draw on your knowledge and wisdom. My dad lives with CLL, with 3 relapses along the way over the course of 14 years. On our recent visit with oncology we were told he has relapsed again with no further treatment options...
Hi everyone...I cant remember if I was in this group before. Apologies if I'm still in it. My name is Linda, I was diagnosed with CLL in February 2009 at age 49. Was on W and W until October 2024...had treatment with obinutuzumab and chlorambucil which...
Hello there I was wondering if anyone else who has cll and compromised immune system has been successful in claiming pip? If so please could you give me some advice as I am finding it really difficult to get them to understand how this impacts my life...
Hi all. I was diagnosed with CLL 19 Mar 2024. At the time of diagnosis my Consultant said that I could have possibly endured this disease for over 35 years. I have never been thoroughly tested (bloods) but I have had numerous X-rays, MRIs & CT scans...
