Having been diagnosed with CLL two years ago, I have been having three monthly blood tests and consultations with my haematologist .... until now! My blood tests and general condition has been stable so far, so my next check up is now extended to six...
Hi all, I just wanted to share that, I am currently 8mths post immunotherapy treatment and have been informed that at present I am in remission. I know this is not a cure and it has taken me a couple of weeks to absorb the news. Hopefully I can relax...
I am on my very last week of oral chemo meds. The past year has been rough, but this past month I've felt worse and worse. Had a emergency appointment with my haematology nurse today, bloods taken and a chest x-ray because of constant heart palpitations...
It seems a bit quiet here.
Hi all. I was diagnosed with CLL 19 Mar 2024. At the time of diagnosis my Consultant said that I could have possibly endured this disease for over 35 years. I have never been thoroughly tested (bloods) but I have had numerous X-rays, MRIs & CT scans...
Has anyone ever received a letter from Macmillan cancer support, saying that "your case is now closed" "unfortunately as you have not received treatment at one of our hospitals within the last 6 mths,we are unable to assist you on this occasion ". I sent...
Hello, Is anyone else with early stage CLL experiencing severe swelling of their under arm lymph nodes, a few days after Covid and Flu vaccinations? They are approximately the size of half an avocado and very tender. Thankfully they go down after...
I have a question about HCL and New Style ESA. I have been on New Style ESA for four months now. I will have a health assessment soon and I am scared if they say I am fit to work. The thing is I have some good days (I feel really excited when this happens...
Hi I have a question regarding mosquitoes and being in remission. My husband has been in remission from HCL for the past 10 months. All his recent blood counts are very good. We're planning a trip to Italy in autumn next year, to an area where there...
