Who is out there?

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It seems a bit quiet here.

  • I only ask because I find the evenings, after the support lines have closed, to be the hardest. I've been on watch and wait for coming up on four years. It's an 'OK' story. It just doesn't always feel like that.

  • Hello  (love the user name and you are correct too it was a Royal Mail Ship).

    I am Brian one of the Community Champions here on the community. I just noticed your post and although it may be a quiet night on this group on the Cancer Chat Group there is a general chat thread for anyone with cancer. Here's the link

     Awake and up all night 

    It's quite an active group.

    I wish you well with your ongoing "watch and wait".

    Best wishes - Brian.

     

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    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • Thanks Brian. 

    There is a saying here in Belfast about Titanic - "She was fine when she left here". I was born in the Jubilee Maternity Hospital, just 9 miles away from where I am now. Apparently I was fine when I left there too!!

  • Ah but

    Was she "swapped" in the graving dock after her "accident" when on her trials for her sister ship RMS Oceanic?? (I should stop reading conspiracy theory books).

    What a cracking saying - sadly for us it's all downhill from Day 1.

    Take care and I wish you well moving forward.

    Best wishes - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • I could keep this going, but instead I just want to thank you for lifting my mood this evening. 'You'll never know...'

  • Apologies for this late reply, but I did not look at my computer last evening.

    However..

    It is easy to be worried about one's diagnosis, and perhaps especially over the Christmas period when we are all expected to be happy and at parties..

    But here's a thought for you..

    Do try and accept this Watch and Wait period after a diagnosis, as it can be some time.  I was 18 years in the watch and wait period..

    Now I take a simple pill twice a day, and this last December 9th it was exactly TWENTY YEARS since I was diagnosed with my CLL.

    CLL is NOT fun, but thanks to research, we can now live a normal life, so there really is much hope for all of us.

    Best wishes

    Dick

  • I can't help myself, I've got to add a line linked to why I chose this user name. Were the rivets used on Titanic imperfect, just like my B Lymphocytes??

  • I am as bad as you:

    Yes, you keep the fires burning in your bunkers - but at least they will keep you alive and you wont sink. Joy

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.

  • I shall rename you 'RMS Carpathia'. Thank you for your engagement with my frivolity.

  • If I can "rescue" you after your "sinking" then as a volunteer I have done what my volunteer roll says I should do. 

    Kind Regards - Brian.

    Community Champion badge

    Macmillan Support Line - 0808 808 00 00, 7 days a week between 8am-8pm

    Strength, Courage, Faith, Hope, Defiance, VICTORY.

    I am a Macmillan volunteer.