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Hi. My treatment is being changed for the third time due to skin reactions. One part being an extremely sore scalp and breaking out in pin prick blisters in hair. My scalp gets very dry and feels tight. Any suggestions of how to ease this would be appreciated...
I’m new here, and I’m coming up to a year since I was diagnosed. I went to the doctor in April 2025 because I’d been feeling more tired than usual and getting light‑headed between meals. I hadn’t had any blood tests for a while, so they sent me for...
Hello - I’m new to this forum having only had my CML diagnosis in the last 24 hours. I’m a fit and active 52 year old with a busy home and work life. The diagnosis was picked up through a routine blood test after I made an appointment with my GP due to...
Hi My husband has started dasatinib as imatinib was not working. He was diagnosed 20 months ago. He is having real problems with breathless and anemia and low sodium can't seem to discover why. He is on the maximum dose of iron has anyone else out there...
Hi All, New here and was diagnosed with CML on the 24th October 2025. I started imatinib 13 days ago and the side effects are awful over the last 5 days. I ache all over like i have the flu but nurofen and paracetomol are helping with this. I...
Hi all, just a question about something that’s been bothering me, in the last few months but more so in the last 4 weeks I’ve had such a decrease in my appetite. I’ve little desire to eat and when I do, I feel full and nauseous afterwards. For context...
Hi Group After describing the start of my wifes journey as she is admitted to Worthing hospital last Monday to start he first cycle (3 x 90minute ) Chemo infusion treatment. As if today she is two in and is showing no side affects he blood levels...
Hello My name is Merse1806 and my wife has been diagnosed with CML and is due to start Chemotherapy hopefully this week. We are both very scared due to not knowing. My wife is very well physically still very active bubbly and asks me at least 3 times...
Hello 33 years old diagnosed with CML three years ago. Iv tried 4 different lots of chemo tablets daily all which don’t ageee with me and make me very sick & poorly. Is there anyone else who has side effects to treatment? I now have a hospice nurse and...
Hello everyone. I’m posting on behalf of my daughter. 25 now but 16 yrs old at diagnosis. Paris had an ok response to imatinib but her team were keen to switch her to Nilotinib after a year. She became undetectable after 12 months and remained on Nilotinib...
