Hi Denise683850a6 and welcome to this corner of the Community but sorry to hear about your daughters journey.
I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but for some context I was diagnosed way back in 1999 at 43 with a rare (8 in a million) incurable but treatable type of T-Cell Non Hodgkin’s Lymphoma……. eventually reaching Stage 4a in late 2013 when a second, also rare (4 in a million) type of aggressive type of T-Cell Non Hodgkin’s Lymphoma was then presenting so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of this journey rather well.
CML is on the rare side, but there have been a few active members over the past few weeks so let’s look for any group members to pick up on your post and get back to you.
You can also click on the main ‘CML Group’ title and this will bring up all the group posts. Have a look at the posts and as always you can hit reply to any post and connect in with the wider group conversations.
You may find it helpful to call the Macmillan Support Line open 8am-8pm (timings may differ across services) 7 days a week on 0808 808 00 00. This service provides cancer information, practical information, emotional support, benefits/financial guidance or just a listening ear.
For good information do check out Leukaemia Care UK. Leukaemia Care UK are the UKs main Leukaemia Charity who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
Always around to help more or just to chat
Thanks for your reply Mike. That’s really kind of you. Hopefully someone will be able to share their experiences.
Best wishes Denise.
I put Asciminib into the search tool near the top and only found a few posts, do have a look.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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