Hi My husband has started dasatinib as imatinib was not working. He was diagnosed 20 months ago. He is having real problems with breathless and anemia and low sodium can't seem to discover why. He is on the maximum dose of iron has anyone else out there had any of these problems? Hope everyone in the cml community are doing well.
Hi Millpool88ac11 sorry to hear about your husband’s challenges.
ai was leaving your post for a little while to see if any group members had first hand experience.
As you may remember I have a totally different types of blood cancer but over my main treatment years late (2013 to late 2015) I had issues like breathless, anemia and low sodium but my team always found the right path to help me out……. Let’s look first the same for your husband.
As you will see this group does not have a lot of activity…. this will be down to CML being rather rare.
To widen your support base you may want to look at connecting in with Leukaemia Care UK. Lucre UK is the man UK Leukaemia Charity who produce very good information, they run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
((hugs))
