I was diagnosed with CML last year. I might have seen a nurse in my first ever appointment, but I haven't seen one, or one hasn't been assigned to to me (to my knowledge). I didn't even know that I should have had a designated nurse. My oncologist isn...
Hello, I just wondered what other people's experiences were with getting a wig using a NHS voucher. The wig companies that my hospital trust deal with are Aderans (London branch) and Browns (more hair now). Has anyone had any experiences with these...
Hi everyone, I don't post very often and I know people on this site are having a hard time and my heart goes out to each and every one of them. My question seems trivial and I'm almost embarrassed to ask but I've been taking Imatinib for about 14 months...
Hello - I’m new to this forum having only had my CML diagnosis in the last 24 hours. I’m a fit and active 52 year old with a busy home and work life. The diagnosis was picked up through a routine blood test after I made an appointment with my GP due to...
Hi My husband has started dasatinib as imatinib was not working. He was diagnosed 20 months ago. He is having real problems with breathless and anemia and low sodium can't seem to discover why. He is on the maximum dose of iron has anyone else out there...
Hi all, just a question about something that’s been bothering me, in the last few months but more so in the last 4 weeks I’ve had such a decrease in my appetite. I’ve little desire to eat and when I do, I feel full and nauseous afterwards. For context...
Hi! I was diagnosed with CML in February 2024. I am on my 3rd line of treatment and my latest BCRabl was at 0%. Really really good news and I am so pleased to have got to this stage. But emotionally and mentally I am exhausted. I don’t know why I feel...
Hi All, I had my bloods done in Feb and they moved my appointment to today to get the results of my MPN and what they've said is basically I am severely anemic which COULD be the cause of my thrombocytosis, so they're going to treat that for 3 months...
Hi everyone, I hope your personal journeys are going well, mine is on an uphill climb this last week. I was diagnosed with cml 17 months ago and everything appears yo be going well. Numbers are in mm5, I'm back at work, family is good (and I'm guna be...
So after being diagnosed with CML start of August and used to being quite active 56 year old have found it hard not doing things I was before. Have gone out for some short walks but this week I decided to go on my turbo trainer as being a keen cyclist...
