Hi i have been recently diagnosed with CML at 34 no more than 5 months ago and I have been very down every since and have awful fatigue due to the TKI's constantly worrying something worse is going to happen too. I have 2 kids that are still young and...
Hi everyone, I just joined the forum thought of saying hello to everyone. I am a CML patient since Feb 2025. I have joined in to be able to talk to and share my thoughts and discuss my trepidation. I am sure everyone has faced some anxiety due to the...
Hello. I'm new here. I was diagnosed with CML in April. I'm a postman & will be working outdoors when i return to work soon. Just wondering if anyone on here works in the sun with photosensitivity? I'll be wearing a long sleeved shirt, thousers, a hat...
Hello everyone, I was diagnosed with CML last week and am pretty scared at the moment as I haven't started treatment yet and am exhausted all the time. Will Imitanib make me feel better or worse? Thanks Di
Hi I had a routine blood test and was called to say that there was a problem with my blood test result. After lots more blood tests and a bone marrow biopsy I was told I have CML! what a rollercoaster of emotions! I now take Imatinib which has it...
Stopped my meds. They affect my heart disease and basically I made a decision to not take med. I am starting to feel leg bone/ knee chronic pain and wondering if anyone else shares my experience. I know fully well what will eventually happen and am taking...
I have just been diagnosed with chronic myeloid luekeamia and am feeling very confused. I keep thinking someone will phone to tell me this has all been terrible mistake. I feel lime my body has betrayed me. I am struggling to get my head round this diagnosis...
Hi. My treatment is being changed for the third time due to skin reactions. One part being an extremely sore scalp and breaking out in pin prick blisters in hair. My scalp gets very dry and feels tight. Any suggestions of how to ease this would be appreciated...
I’m new here, and I’m coming up to a year since I was diagnosed. I went to the doctor in April 2025 because I’d been feeling more tired than usual and getting light‑headed between meals. I hadn’t had any blood tests for a while, so they sent me for...
Hi All, New here and was diagnosed with CML on the 24th October 2025. I started imatinib 13 days ago and the side effects are awful over the last 5 days. I ache all over like i have the flu but nurofen and paracetomol are helping with this. I...
