Hi. My treatment is being changed for the third time due to skin reactions. One part being an extremely sore scalp and breaking out in pin prick blisters in hair. My scalp gets very dry and feels tight. Any suggestions of how to ease this would be appreciated. J
Hi JaneK and welcome to this corner of the Community although I am sorry to see you joining the community………. I am Mike and I help out around our various Blood Cancer groups.
I don’t have Chronic Myeloid Leukaemia (CML) but I have been on my journey with 2 rare types of T-Cell Non Hodgkin’s Lymphoma for over 25 years so although my Blood Cancer ‘type’ is different I most definitely appreciate the challenges of navigating this journey rather well.
CML is on the rare side, but let’s look for any group members to pick up on your post and get back to you.
Have you been given any advice from your clinical team as to the best products to use…… if not I would be asking them.
My first type of T-Cell NHL is an incurable skin Lymphoma where the tumours grow on my skin…… but 10 years out from my last treatment my skin is actually behaving itself.
Feeding your skin is very important so I would be looking for guidance as to what creams you can use on your head.
I know from experience this can be very messy even with short hair…..
A chat with your local pharmacist can often be a good step…… I am deliberately not mentioning any specific products as there is a need to get the correct product to fit the situation….. my products were often chemo related.
The other very important tool is drink drink drink…. unfortunately not alcohol but a minimum of 2 litres of water every day…… thus feeds your skin better than most things.
For good information do check out Leukaemia Care UK who produce very good information and run various support platforms including their Buddy Scheme, they also have a Support Line on 08088 010 444
You may also want to check to see if you have a Maggie's Centre in your area as these folks are amazing and most centres do run monthly Heamatology Support Groups and the one I attend does have a person with CML in it so worth checking.
Always around to help more or just to chat.
