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Hi Has anyone had a heart problem occur whilst on imatinib? My husband who is in his 70's has diabetes and hypertension has slowly become breathless and exhausted over the last 16 mths on imatinib he hasn't reached molecular remission. He had a heart...
Hello My husband was diagnosed 16months ago. He is on Imatinib but his molecular readings have gone down slowly then gone up then down again. He seems to be struggling with fatigue really badly . There is a discussion about changing his medication but...
Hi I never expected that I would be on a site like this. My husband was unexpectedly diagnosed last Sunday. He had a routine blood test when he went to hospital with a different issue and then they came and said Leukaemia. We are both still trying to...
Receiving a diagnosis of chronic myeloid leukemia on June 26th was quite a shock. Initially, I attributed my symptoms to early menopause, given my age of 36. I've started nilotinib treatment and have been on it for about two months. There was a brief...
Hi all, I’m new to the forum so would like start by saying hi to everyone. I was diagnosed with CML in June 2024, I was prescribed imanitib 400mg. All my levels were going down brilliantly until Xmas, when my leukaemia levels went up to 3.1 from 0.53...
Hello everyone, I just diagnosed with CML last week, and currently, I am consuming hydroxycarbamide. My doctor said that I would start consuming imatinib, but I don't know when it will be started. Based on your experiences, how long did you consume hydroxycarbamide...
I was diagnosed about 3 weeks ago. It was a total shock as I had no discernible symptoms. I had a blood test at 1:30PM on a Saturday, expecting results in several days. At 9:30PM we had a doctor knocking on the door telling me to get to A&E ASAP. My white...
Hi! I was diagnosed with CML in February 2024. I am on my 3rd line of treatment and my latest BCRabl was at 0%. Really really good news and I am so pleased to have got to this stage. But emotionally and mentally I am exhausted. I don’t know why I feel...
Hi all. Very sad to be here and also grateful for the support. I hope you are all progressing well with your personal journeys of recovery. I was diagnosed with cml a month ago and start imatanib today. I know it will compromise my immune system but I...
I was diagnosed with CML in Jan 2021. On Imatinib for a year (changed due to side effects). Then Dasatinib for 3 years. Stopped due to huge plural effusions on both lungs found after a few months of being unwell, cough, losing weight and shortness of...
