Has anyone been told the what’s and the whatnots on what to drink by the experts, after my TURBTs the first thing I was offered was a cup of tea, I do drink shed loads of water but still like a Guinness and a G&T, I’ve had no discussion on the do’s and...
Hi all! Just a quick question to those who have experience witb CIS? My lovely 67 year old dad has just found out he has a recurrence after only 3 months of finishing bcg for non muscle g3 pt1. He has now developed a g3 pta CIS growth (and will probably...
Hello to everyone Oldies and Newbies I haven't been very active on the forum for a few weeks but I have been reading all the posts. I can see that we have lots of new folk on the forum who are right at the start of their BC journeys. I hope this forum...
As the heading says I had my flexi cystoscopy at 9am this morning delighted to say it was clear, back to my BCG maintenance 13,14,15 on 15th May looking forward to a few months relaxation. Love and best wishes to all. Lynn xx
Well, back in December, I had the initial TURBT; I was told I'd get a follow-up in 3 to 4 weeks. I finally (after chasing) got an appointment on Jan. 30th to see the consultant. Then, on Jan 28th, I was called in for a CT scan. When I saw the consultant...
Hi - I was just wondering if it’s normal for the cystography letter to state that the CT urogram had ‘no abnormalities’. But on my patient portal the urogram results aren’t ready til 26th Feb..? Is that the usual way of things..? I’m just going over...
Hello all. My name is Steve, 71 years old, and this is my first post here. Back in July I had a single episode of haematuria. I called for a GP appointment next day and the wheels started turning very rapidly. Long story short, I was diagnosed with...
My mum 81yrs was just diagnosed MIBC and awaiting options discussion. Chemo and RC look likely. She is very fit with no comorbidities. i have been researching and see very good trial results for immunotherapy checkpoint inhibitors (keytruda/padcev etc...
Good Evening, It's been a while since I posted as it has been a very hard time. My dad was diagnosed with muscle invasive neuroendocrine small cell cancer in October, he has had two TURBTs where they managed to remove nearly all the visible tumor...
My letter of consultation states necrotic tumour unoperable bladder removed. Frozen pelvis .but might recommend stoma . I knew it was invasive bladder any advice ot similar diagnosis help
