2nd Maintenance Round of BCG completed!!

Hi Ade,

Good to hear you've done twelve and yeah I also found the effects take longer too recover from as you go on.

Although you should have a six Month break from your next instillations now so have more time to recover.

Wishing you all the best for your cystcopy.

Trevor 

Hi Ade, I'm at the same position as you on the bcg journey and I also found instillation no's 10, 11 and 12 had stronger side effects, especially the tiredness.

Keep reminding yourself that it fighting off the baddies, I find this helps.

6 months break now, my next round not till July.

Keep strong

Anne x

Hi Ade, well done , i found the same after number 12. However the 6 month break is a blessing. I dont know if its just me but there are times in the break where , because there is no treatment i have found myself forgetting i have had BC . Its a very odd feeling , just thinking about normal stuff and getting on with life. keep us updated on the cystoscopy & scan. Enjoy the break from bcg .

Hi Ade,Good to hear you have got through round 2.I hope the break will help you to recover from the side effects.Love Jane x

Thank you Trevor. I'm really hoping that this next cystoscopy is clear as I've had to have biopsies taken after the previous 2.

Love Ade xx

Hi Anne, the 6 month break will be very welcome. I feel exhausted after the last 12 months. 

We have a lot of living to do til July and I'm determined that 2025 is going to be a good year. Let's enjoy it.  

Love Ade xx

Hi Angela, the last 12 months have been filled with hospital appointments so as long as the cystoscopy is clear I will look forward to a nice long break and try not to think about BC. As soon as I have a date for the cystoscopy and CT I'll give an update. 

Hope you are well.

Love Ade xx ️ 

Thanks Jane. I'm looking forward to a break from it all.

I hope you get some answers to your back pain soon too.

Love Ade xx

Hi Ade,A break will be good for you,hope you can relax a bit..I’ll be glad to get my results.Love Jane xx

Hi Ade keeping everything crossed for you.

Hopefully, you won't need another biopsy this time.. although for some reason I've been having biopsies every three months..Even though my BCGs are 6 Month's. Who knows why or why trusts are so different.

Think I know every anaesthetist in the area now.

Take care.

Trevor