Necrotic bladder

Hi Chris,It sounds confusing.Have you had a stage and grade yet ? love Jane xx

No not yet xxx

I didn’t think you had.Is it this week you are seeing a specialist or am I getting muddled ? 

No had pet scan Saturday and got mri this afternoon then I've got to wait for them to review scans then I will get an appointment I'm so scared thinking now it's not curable

It’s a lot of waiting around for you,it must be very stressful.I hope the MRI is not too painful for you.Sending a virtual hug.Love Jane xx

Thankyou Jane it's been agonising 9weeks seem to be going round in circles .I'm up and down with mood trying to stay strong xxxx

It’s awful that we are kept waiting so long.I don’t think the specialists realise how stressful it is not knowing.I’m still waiting for my scan results and trying to stay strong too.Xxx

I do hope you get your treatment plan soon, waiting is agonising 

Thankyou Leo x

Hi Wilkie, I hope you get a plan soon , the waiting is so awful . sending you strength and love x