Good Evening,
It's been a while since I posted as it has been a very hard time.
My dad was diagnosed with muscle invasive neuroendocrine small cell cancer in October, he has had two TURBTs where they managed to remove nearly all the visible tumor.
Due to weak liver and kidneys he wasn't suitable for chemo but has just finished 20 sessions of radiotherapy, its been really hard on him as his symptoms worsened during this time, but he got through it and my sister and I are super proud of him. We both took him to every appointment, so he was not alone.
I'm looking for some reassurance for those that have had radiotherapy, the consultant has told us he should start to feel better after 6-8 weeks once he has healed from the treatment.
Has anyone been through anything similar? when did you start to feel better (pain and frequent urination) he has lost so much weight and is unsteady on his feet, he also can't eat and is living off protein drinks, he needs a break, praying the radiotherapy does it's job.
Take Care x
Hello again 2ndDaughter44 . Good to know dad has finished his radiotherapy. I had 30 sessions of RT for MIBC. 64 gray in total over 6 weeks. I also had chemo alongside this via a PICC line for two of the weeks. Tolerated it quite well during treatment although a bit tired towards the end. It was after treatment finished that the real fatigue kicked in. The radiation carries on working for a few weeks after treatment finishes. Each day I felt a wave coming over me and could feel the energy draining. I had to curl up on the couch for a few hours until it passed. I also had erratic bowels for several weeks with the sudden need to go. This is common with any pelvic radiotherapy but it gradually eased. The fatigue lasted a couple of months but gradually got better. My treatment was eleven years ago now. Best wishes.
Hi Riley,
Thanks so much for your reply, this is super reassuring 
That's amazing your treatment was 11 years ago, I'm so pleased it worked for you.
Fingers crossed for my dad.
Take care x
Hi 2ndDaughter44 . Just to add. As regards the frequent urination. It may sound like a contradiction in the circumstances, but your dad needs to keep drinking plenty of water. People fall in to the trap of not drinking in the belief it will stop the need to go. This has an adverse effect on the bladder. Urine becomes concentrated and acidic and irritates the bladder causing the feeling of needing to go. Water helps the bladder. Some people recommend a touch of lemon barley to help get it down. Best wishes.
Thank you, it got really bad so he has a catheter in at the moment, he hopes that will come out in the next couple of weeks.
He drinks a lot, but not quite so much water, we have brought him lemon barley. 
