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Hi, this is going to be a bit of a depressing post, somewhere for me to air all the jumbled thoughts in my head without worrying I’ll be letting anyone down. I’m just feeling very low and in a way broken. When I was diagnosed I was assured that I...
Hey everyone, I'm Ruby I'm 23 and I finished my treatment for ALL in summer last year. When I first finished treatment i had a sort of chemo hangover when I felt hungover and rough for a few months as the chemo left my body. But that went away and...
Hi everyone! I am due a stem cell transplant on th 9th Feb because my ALL relapsed last year. Im facing atleast 6 weeks in hospital, 2 hours from any family and still no visitors allowed. Does anyone have any advice or experiances that they think...
Hi... New here and found out after 4 weeks living with a large lump in my leg, that I have stage 2 lymphoma.. I was confused at first as I thought, how can it be this when I seem not to have the symptoms like weight loss...but recently I have been...
Hi all On Friday I got a call from my GP with results from recent blood tests (following up from some in December as well) to tell me she is really sorry but my WBC's are at a level where I am looking like having a blood cancer or type of leukaemia...
Hi, Just wondering if anyone has any experience of FLAG IDA? I am due to have it soon and was wondering about side effects, how long it takes for neutrophils to return and how long people sent in hospital? Thanks in advance!!!!
Started with the heamochromatosis this has been ongoing this then turned into CLL started kimo treatment a few months down the road the kimo tablets started to disrupt liver so stop and start stop taking kimo to help liver no easy way out body feels crap...
Hi All, I'm struggling a little today & need some advice how to tackle the issues of not being able to conceive naturally anymore. I had 45 rounds of chemo, 5 days of TBI ( radiotherapy), I've been cancer free for 15 months which is amazing and I thank...
Hi everyone! I’m a 71 year old female in what she thought was exceptionally good health … obviously not! The bombshell dropped last week and am waiting to start treatment, keen to get started! Feeling positive at mo but expect that will change soon...
Hi All, My partner was diagnosed about 4 weeks ago now with ALL (Philly+), he is now undergoing chemo and taking it like a absolute champion. He is 30 and I am 27 so its been a lot to take in, I was just looking for a place to share experiences and...
