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Hi All, My names Terry 41 years of age and i was diagnosed with ALL March 2020, i had over 45 rounds of chemo, 5 days of TBI and fortunate to find a 100% donor who saved my life, now 2 years and 5 months post BMT, and doing well, only issue i'm finding...
Hi everyone, We’ve launched our annual survey for 2022! We want to hear what you think about the Online Community. The survey should take around 15 minutes to complete. The survey is anonymous. Please complete our survey here. This survey is designed...
Hi, my daughter was diagnosed with Acute Leukemia in February last year, she was in hospital for most of the year and I cared for her two children aged 8 and 10, my daughter had a stem cell transplant last October and is now in remission, but still obviously...
Hi Everyone :) I've been meaning to post for a while but I've been really apprehensive. I guess I'm looking for some positive stories to lift my spirits and keep me focused on getting better :) I'm a 31 year old male and I was diagnosed with T-LBL...
Hi everyone, this is my first message here. I am female patient 18 years old was diagnosed with ALL when I was 16 can hit remission however my ALL relapsed and I want abroad for a stem cell transplant everything went well except I had to get a colostomy...
Hi, I’m new to this. My mums just recently been diagnosed with ALL philadelphia+. I don’t have a very supportive partner so it’s quite hard to speak to people about this all of the time. i just feel like I want to shut myself off from the world and be...
My teenage daughter was diagnosed with ALL mid May. It's been an overwhelming few weeks. Tonight I feel terrible and can't sleep. I thought I'd try to tell someone but it's late and there's no one to tell. So I came here. It is hurting so much to see...
Hi there, I'm just looking for some advice for my 14 yr old daughter, Diag with ALL last October. She is suffering terribly with mouth, throat and jaw pain from having the methotrexate chemo last Monday . She can't eat anything with the pain so we're...
My son is 10 months post sct and is having serious complications of the cgvhd of the lungs. His lung function is very poor and we are struggling to get it under control. Is waiting to start ecp at guys. Would love to hear from anyone who has had similar...
Last August my fit and well husband had a seizure and was diagnosed with ALL. He coped amazing with the stages of chemo on the ALL 60+ protocol and got into remission very quickly, he was just going into the 2 year maintenance stage when his bloods started...
