Me and my cll and to make things more interesting heamochromatosis liver

  • 3 replies
  • 5 subscribers
  • 905 views

Started with the heamochromatosis this has been ongoing this then turned into CLL started kimo treatment a few months down the road the kimo tablets started to disrupt liver so stop and start stop taking kimo to help liver no easy way out body feels crap so just have to pick my self up and take each day as it comes

  • Hi Ern, it’s very hard, like yourself probably I have good days and bad days, not started treatment as yet. I’m a 62 year old woman just been diagnosed with rectum Squmamous Cell Cancer, have a PT scan on Wednesday. Just want to start treatment NOW. Can’t be doing with this waiting for appointments, as I worry it will spread.  

    You take care Louise 

  • Hi  you may want to join and post in the CLL, SLL, HCL group as CLL is rather different from ALL.

    Mike (Thehighlander)

    It always seems impossible until its done - Nelson Mandela

    Community Champion Badge

  • Thanks for your reply it’s hard waiting for your next appointment so many thing go through your mind as myself I always tell myself tomorrow will be a better day