Not coping

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My dad is 91 and has skin cancer. His tumour bleeds terribly every morning, and he is unable to clean up properly. He smells, is always covered in blood, and eats raw pizza for lunch. He is palliative care only of course, but yet he refuses any extra care beyond district nurse visits 3 times a week to change his dressing.

I am constantly sick with dread and worry and finding it hard to cope. He refuses the help available then leans on me for so much support. I am breaking.

I'm not sure why I am writing this actually. I suppose any advice would be appreciated.

AngApp x

  • Hi AngApp

    I am so sorry to read your post above, there are many different elements within it, dad's diagnosis, the morning bleeds, hygiene elements and food consumption concern. But within all of that, there is concern for you, it feels like you are under an extreme amount of pressure, yet Dad is refusing help from anyone else..  I don't know enough about your dad's other health factors or if he has capacity, but there is a large amount of support that is available to you, and Dad if he agrees. 

    The Macmillan Support Line is open 7 days a week, 8am-8pm on 0808 808 00 00. Here you will be able to discuss everything that you have mentioned above and receive expert advise which may offer you some guidance with things you were unaware. 

    Hopefully you will soon also receive some replies from the Macmillan Team now that you have reached out with this post, support is here for you Ang, I hope when you come back to the forum it is here waiting for you.

    Sending Strength.

    Lowe'

    Call the helpline for free on 08088080000, 8am to 8pm everyday.
    Tomorrow is not promised but it always has potential. Aim for your potential!
  • This sounds so very difficult for you, sending care and a message of solidarity.

    I find myself feeling similarly helpless with my husband at times as he gives a great story of coping to his Palliative care nurse and Consultant but in the middle of the night when he is in overwhelming pain and scared, it is down to me. And then the next day refuses to reach out for help again. 

    Hang in there, we are stronger than we think but be kind to yourself. 

  • FormerMember
    FormerMember

    Hi AngApp,

    I only joined this yesterday so I am certainly not one full of wise words of advice and support. I just know lots of people can sign post numbers, organisations and much more to hopefully get you and your dad the help, support and care you need.

    I am so sorry for what you are going through at the moment. Sending you lots of love and hugs xx