Hi
My 91-year-old Mum has terminal oesophageal cancer, diagnosed in January. She lives alone. Her symptoms have worsened over recent weeks and she’s become increasingly weak.
The hospice nurses have been supporting us. (I’m an only child and live an hour away). I put a three-day-a-week social care package in place so I could go home for mid-week days and continue working. However, on Wednesday we hit a crisis point - Mum fell in the bathroom at 7am and was discovered by the carers. It was the most awful, traumatic day for her and she was eventually taken to hospital by ambulance at 4.45pm. She’s currently there in the Acute Frailty Unit where they are trying to stabilise her (she’s in pain and not eating) and there’s talk of a potential blood transfusion tomorrow.
I’ve concluded - and agreed with Mum - that she needs expert round-the-clock nursing care now. I just want her to be safe and comfortable for the time she has left. We cannot go through a day like Wednesday again.
So yesterday I just took action myself and went to look at nursing homes in the area Mum would prefer to be. I’ve selected one and have even reserved a room so Mum can be discharged directly there from hospital.
The fees are eye-watering - I can probably manage them for three months before I need to draw down from my pension. So, what I’m asking is about CHC funding - how easy is it to get it, what hurdles do I have to overcome, who even applies for it on Mum’s behalf? Mum has little money of her own and is on pension credit. Macmillan helped me secure Attendance Allowance for her.
I’ve looked at all the sites for advice, made an enquiry to Beacon and am waiting for my hospice nurse and social worker to return to work after the weekend so I can discuss with them.
But, if anyone has experience of securing CHC funding for a place in a nursing home, please share so I know what I’m facing/what questions to ask.
Thanks.
Hi Livia
There is a fast tracked CHC process which the hospice or DNs should be able to help with. Sadly for my husband, it came through the day he died.
I know its really hard to get through normal means. Its also worth asking the care home if they do it. My mums care home automatically applied for all of their patients and mum got 3 weeks before she died.
But I do also want to add that you are not responsible for paying care fees for your mum, and I would urge you not to go down that path. She should get a social care assessment before she leaves hospital, and if she hasnt got much savings, then they should fund her care. If she owns her own home they can count that as money but some care homes would take her in and be repaid once her house is sold. Possibly the council would be involved. I think this is called something like a deferred payment agreement so worth looking it up. But you would have to negotiate all that before her moving.
First call, wait until you speak to social worker and hospice nurse. Between them and hospital, they may have a better sense of how long your mum may have and whether she is eligible for fast tracked CHC because its a much quicker assessment.
Im no expert by the way, just sharing experiences, others may have different exoeriences.
Thinking of you x
Hi Malengwa
Glad you found me on this forum. You’re right - I do need to speak to the hospice and social worker as first port of call. I’m just making panicky knee-jerk moves to feel I’m doing something - anything - to make things better for Mum. So I’m thrashing around blindly. And it’s the weekend so there’s no-one about to get to grips with my situation.
I checked re the need to sell Mum’s house and the council seems to leave it 12 weeks before the value of the house is taken into account.
I know I need to seriously calm down and be patient. I think Mum’s fall traumatised me as much as it did her!
Im sure it did, it is traumatic. Do you do any deep breathing to calm you, or tapping. I did a tapping course and it does help a bit when I feel a full melt down coming on.
Keep us posted. Its good the council give you 12 weeks, at least to give you a little time. They must face this all the time.
Well - I've never heard of tapping. Just looked it up! Thanks for the advice. Yes - I will keep you posted. Just preparing for the trek to the hospital.
And by the way Malengwa - you do a marvellous job of replying to people on these forums. You make everything seem that little bit less lonely.
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