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Yesterday Social Services came up to do a care assessment on Mo & a carers assessment on me.Very nice lady unfortunately can't remember her name,we have had so many people visiting for one reason or another remembering names has been hard.After giving her all the history from day dot about whats been happening to Mo we managed to make some care arrangements.Someone will be coming in three times a week,Mon,Weds and Fri to help Mo have a wash,wash her hair if needed and maybe get her in the bath.We...
over the coming weeks commecing on the 28th june im having a stem cell transplant and will be keeping a diary on this blog! one to kill the boardom and two to keep a record of my day to day events to help others to understand what happens who are to go down this road......
To be continued...........
17th June 2011
Bit of a set back today after having my medical and PET scan on monday, was told today that my donor was not able to donate at this time, so its back to the drawing board to find another...
Hi everyone, just thought I would let you know that a stem cell donor has been found for my husband and it appears to be a 100% match! The next chapter of our journey begins on 20th October with the pre-transplant chemo in order to kill all his own stem cells. The donor cells will be transplanted on Thursday 27th October a big day!!!!! wanted to share this news with you all. Much love, Julia xxxx
It was 3 years ago today that Bert was diagnosed with his AML. he fought hard struggled through his chemo which caused all sorts of problems. He achieved remission and we were delighted. However, exactly a year later to the day he relapsed. Devastated was an understatment. They found him a Bone Marrow Donor and got him into remission yet again. We went to the Beatson in Glasgow the week after they told us he was in remission to prepare for his pre transplant chemo, only to be told that "you have...
I don't think this one will be very funny so sorry for that.. just thoughts rolling around that seem to be a bit wistful and weird... not sad at all, just... hmmm like the morning mists if you know what I mean... and you never know it might make you snigger along the way... lets see....
Its my son's birthday today. He is 20. Now I don't quite know how I ever got old enough to have a 20 year old and that is kind of scary to think I am, even if I was quite young when I had him, I am not grown...
hi everyone... not posted in 100 years. hope everyone is as well as they can be...
i am still with lymphoedema and probably always will be but its managed with support garment and painkillers and moisturiser.... not nesessarily in that order
work is busy and it keep my mind off other things... bought a little smart car off a colleague and love it and it helps me to get to st albans to see mum and dad every other weekend.
keeping up with 3 monthly check ups at the MM clinic and the lymphoedema...
Well, nice long sleep with no weird dreams, ok, rephrase that, no gory dreams, as mine are always a bit odd, its the nature of dreams isn't it?
I was rearranging a house with an ex, and setting up a stall selling clothes and food in the market. And why not? :)
AH yes, ducks. We had 7 to begin with, they were a 'rescue'. They roam freely in my mini field all day, and tucked up in their duck house (which was a present for my 40th birthday from my mum) at night. But, we have lost 3. Fox? Nah...
Mo woke at 5am didn't actually feel her get up,just heard her crying in the front room.I got up to see what was wrong,"I just wanted a drink but it was too far",she said, bless her! Then she said that "She didn't want to wake me up & that she was selfish","Thats the one thing you aren't", I replied as I gave her a big hug. "Yesterday was too much with Paul" Mo then said crying on & Off I said "Yes I know but at least he wants to come up more and spend some quality time with you", she agreed but promptly...
