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been a long day mums got a rash been for the bone scan but she had the rash before so it can't be that .went straight to the docs after hospital and she's unsure what it is and phoned the cemo unit as mums got to start taking her steroids tomorrow ready for thursday and she doesn't want her taking them if her treatment won't go ahead .so sat here now waiting for the call just hope its nothing that will delay her treatment any longer fingers crossed.
had the diagnosis, tomour in lower bowel, invasive, done CT/MRI scans, blood tests, go the schedule na hd the tatoo.
Today base line blood test, then collected Capecitabine (Xeloda®) tables, 1650m, twice daily, seems like rather heavy dosage to me, but what do I know. Apprehensive, oh yes, but prepared my body/soul with Bowen techniques, and assorted other treatments to be sure as relaxed as physically possible. Tomorrow is the first radium treatment, so another first. been through the side effects...
Dad has just called me to say he has been told he had 2 years to live. I am determined to help him beat the ticking time-bomb!! xxx
His story so far....
My dad is living with a brain tumour which until very recently was thought to be benign. It is now asuumed to be a higher grade. Today he is meeting Dr Matt Grffin at Nottingham City to discuss radiotherapy. Everything seems very scary at the moment....
My father lives in Mansfield and I live in Southampton so its tough being so far away.
How my jounrey...
Hi all, well am having the day off work today. Had a sore throat this morning and since the period of low blood levels is starting tomorrow, I thought it best to have a rest. I am not too bad otherwise. Energy levels are fairly good. I've had an on and off poppy tummy and that embarrassing burping, though I think that was down to the anti sickness drugs as certainly the last couple of days since I came off the drugs seems to have calmed that down a bit.
So, just watching myself lots at the moment...
Not been posting progress of my Mum - just been to horrendous to try and put into words.
She had 2-3 months in hospital for treatment and got home just before Christmas and gladly the tumour had reduced a lot, but then has had 3 x 4-weekly R-Chop treatments. She has her scan today then her review next week - so scared and feel really selfish because my mum has fought the whole way and been so positive - has had some bad days but hardly any considering what she's been though.
I suppose all we...
just sat on the sofa today having a coffee and chat to mum and she starts telling me what songs she want at her funeral nearly choked on my coffee i know she like's to be organized but this..... think maybe she's jumping the gun as yet we don't know the all the results .i know me and my dad used to talk about what he wanted when he past but he knew it would happen soon and didn't want to upset my mum and because we were so close it was just easier to tell me .but when it came too it my brothers and...
Had hysterectomy for heavy bleeding/fibriods on 2nd March 2010. Cancer cells found. Had result of first CT scan with oncologist today. There are signs of spots on my lungs and also a mass in my pelvis. They are not sure if this is cancer or post op fluids etc. I am having chemo on 12th April using doxorubicin. My consultant said chemo was not always effective against saracoma. I feel quite numb. I have 3 boys 16, 15, 12 and a lovely husband. Don't know how to start telling the boys about this. I...
I spoke to the consultant at the Royal Free on Friday (26th March) - no update - we are STILL waiting for funding from my local PCT.
I also had a meeting with the local Central Advocacy Services on Friday - and i'm hoping they can get in contact with my local PCT and find out whats happening. They agree that the time i've been waiting is too long, and not acceptable. So lets see if we get anywhere!
I had my second dose of Vinblastine today. Once again 4 attempts to get the cannula in...
I have to be at the Royal Marsden at the crack of dawn tomorrow to have my mask made. Then back in the afternoon for my first blast of radiotherapy to my brain. Only five sesions in all but they have warned me that as it is my whole brain my hair may fall out!!!!. The treatment MAY bring back the feeling in my left hand, but no promises.
So if anyone else says "IT WAS ONLY a MOLE" please may I thump them?
Please wish me luck,
Gill x
Jim's wife rang yesterday morning. He's had some more problems that are keeping him in hospital still. It sounds like its the same thing Mike had a while after he was discharged. It might be rather fortuitous for Jim that this has happened while he is still in hospital, so they can fix him up before he goes home. He's able to walk around OK using a stick and all of the hardware had been detatched from him too by the sounds of things.
It seems he's a bit down in the dumps too poor thing...
