Day 1 the fight begins

Less than one minute read time.

had the diagnosis, tomour in lower bowel, invasive, done CT/MRI scans, blood tests, go the schedule na hd the tatoo.

Today base line blood test, then collected  Capecitabine (Xeloda®) tables, 1650m, twice daily, seems like rather heavy dosage to me, but what do I know. Apprehensive, oh yes, but prepared my body/soul with Bowen techniques, and assorted other treatments to be sure as relaxed as physically possible. Tomorrow is the first radium treatment, so another first. been through the side effects, but what will affect me is the voyague of discovered, plenty of cures for some side effects, just in case. I did notice the future NHS prescriptions are free if exemption certificate is obtained from your GP, being a C patient. (so some perks.,...).

Started to exchange emails with fellow Maacmillan user, who has the same diagnosis, but has been through the cycle , is now at stoma stage, hoping this is atemporary mesaure. I suspect this is to come, but one day at a time. So day one of my personal journey...

Anonymous
  • FormerMember
    FormerMember

    I have been through all of the treatement including xeloda, radiotherapy and major surgery so if there is anything you want to know please don't hesitate to ask. I found the xeloda OK but the effects are cumulative so as each slice progresses you do start to have side effects. I didn't have nausea or diahorrea but devloped a craving for chocolate which i normally never eat. Radiotherapy crept up on me. Two weeks before the end of five weeks I got radiation burns up my anus and abdomen which meant going to the toilet was absolte agony. I hadn't been using the cream because I never had any symptoms but make sure you use it all the time. I also became incontinent. If you do get pain when passing stools then please ask for intrasite gel which is amazing stuff. I lost my toenails and my finger nails got ridges. I now have a permanent stoma after losing two feet of bowel and my anus and rectum. My journey has been published on this site under the "Demise of Roland Ratso" and the second part, "Roland's Revenge." which is a blog of my personal experiences.

    Keep smiling

    Drew

    X

  • FormerMember
    FormerMember

    Hi

    I was diagnosed with bowel cancer last June and had surgery followed by 6 months chemo (oxaliplatin and capecitabine). I didn't find capecitabine a problem. Any side effects can be successfully controlled with medication.

    This site is a great source of advice, support and even laughter (I urge you to read Drew's blogs). Wishing you good luck as you embark on your journey.

    Take care

    Angela x