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So finally got the results on Monday and was so so scared with every day running up to it, and could not stop the feeling of sickness on the way to the hospital.
Having established that I am apparently my own jinx as everytime I rock up to these damn consultant appointments on my own they throw me 10 steps back into utter despair, I very wisely took a good friend with me. And I think I did the right thing as at last, something seems to be bloody working!!!!
The main tumour on the right side of...
Well the temp and BP are back down and things are looking much better again. What a roller coaster ride this is. The funny thing is that the chemo side-effects seemed OK... just fatigue really. It is the antibiotic that has been the trouble. Looking on the internet (not always a good idea I know!) ciprofloxicin is well known for these kinds of side effects but it is a great antibiotic used to treat Anthrax among other things. But there are alternatives and Sal is now going to try Levofloxicin next...
I hope I'm doing this right!
Last October 13th I had a full hysterectomy to remove a cancer. Everything went well and I finally went back to work in January looking forward to improving my sickness record by leaps and bounds after a couple of years of continued ill health. (Lots of gastric problems and anaemia - a battery of blood tests, gastroscopies, flexible sigmoidoscopies, pills and a referral to the occupational health department).
However ...
In November 2008 I noticed that one side of...
Putting my two youngest to bed tonight, my 4yr old said, 'I'll be sad when I'm grown up because I won't be able to see you anymore'. 'Why's that?' I said. 'Because I want to be a horse rider'. She seems to be thinking that when you grow up, you are either one thing or another, and not, say a Daughter and a horse rider and a Mum etc! So I explained that I would still see her no matter what she was going to be, I pointed out that I see my Mum, her Granny, and that she only lives around the corner....
Well Sal is now on IV Tazocin, an industrial strength antibiotic as her neutrophil count is 0.0! Her temp is still high and BP now high too.
The oncologist is surprise that her count is so low. It doesn't normally go to zero and it is 2-3 days earlier than normal too. He is talking about lowering the doxorubicin dose next time... or even dropping it altogether. Apparently, there are some trials in the USA that suggest that the outcomes of TAC vs TC are similar making the A (Adriamycin or doxorubicin...
Hello to all,
As you know started new meds on Monday and yesterday felt really good the best for quite awhile, didn't sleep much at all as my neck had seemed to spasm and was causing a lot of dicomfort. I was supposed to go for MRI on liver first thing this morning but I felt really poorly. had a headache from hell, cold, clammy felt sick the full works. was obvious couldn't travel 35 miles to hospital so hubby rang to explain. all he got was now you've cancelled at such a late date we'll fit you...
My last operation 08/04/10. They used the previous scar from my pelvic clearance in Feb 09, then cut it out and made a new one.
Below is a picture of my skin graft now, nearly 4 years on! It doesn't notice nearly as much as it used to and I feel comfortable not to cover it up as it doesn't stand out since the redness went.
This is a picture I took immediately after my pelvic clearance that I had in Feb 09 to remove a mass from my pelvic nodes.
My first major surgery was the WLE, SNB and split skin graft. June 2006.
Sentinel Node biopsy from behind my knee. These nodes were negative.
Sentine Node Biopsy, groin. Three of these nodes were positive.
The dressing on my thigh was on the donor site for the skin graft.
Having the taples removed from my split skin graft. June 2006.
"Love is not a thing to understand.
Love is not a thing to feel.
Love is not a thing to give and receive.
Love is a thing only to become
And eternally be. ."
we have just had a call from the christie, to say tim starts his radiotherapy tomorrow, that was quick as i only got him back yesterday...lol so early one tomorrow transport is coming at 8.50 so il have to get organised to night, im taking tim out in his chair in about an hour god help him .....lol
speak soon
sandra & tim...xxxxxxxxxx
