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Now her cannula has failed and Sal cannot face them trying to get another in. She is in SO much pain when they try and it is REALLY wearing her down.
After a lot of shouting (well, virtual shouting, I didn't actually raise my voice!) they have agreed to install a Hickman on Tuesday. In the meantime she needs the meds and so they are going to put a cannula into her right arm... the side of the ANC. The oncologist said there is a risk but when needs must.
So, she has to last 3 days with this cannula...
Well, nothing has changed much in herself... still can't take food and still has bad runs (antibiotics) but the good news is that her neutraphils and white counts are up slightly... well they couldn't go down! So this is the first sign that things are starting to pickup.
They tried to get some blood from her this afternoon but it was so painful and unsuccessful. So they are taking it tomorrow somehow. A Hickman or Portacath is absolutely essential as soon a they can fit it IMO. Sal agrees...
….and Fairy Godmothers. Everyone needs a Fairy Godmother. I’ve got a special one and I’m not sharing because she also has hidden talents. Not only is she completely loopy, absolutely hilarious in her observations on life and the most naturally caring individual you could know, she can ….wait for it…..cannulate! Having weekly chemotherapy means a twice weekly prodding of the veins. Once for a blood test and once to have a cannula inserted for the “Red Devils...
Hi everyone! This is my first blog and I have to say how relieved I am to have found this site. The things I have read so far in the forums and blog posts have been incredible. It feels like I have found what I think is an invaluable source of strength and support. Everything still feels very surreal for me at the moment and i have read some very comforting blogs. Thanks to u all xxx
Sal is now neutropenic septic... no neutrophis with infection. Her temperature is up so they have put her on barrier nursing. Everyone visiting have to wear gown and mask. Coupled to that she can't keep anything down, not even water at the moment. She enjoyed sucking crushed ice for a while but they stopped that as she might cut her mouth.
So things are not improving. She had a bad night with vomiting and the runs and then her cannula failed. She has bad veins at the best of times and the nurse...
hi all just to let you all know , tim had radiotherapy yesterday, it seems to have had a very possitive affect on him , and he slept for 5 hours which for him is GOOD....LOL.....hes back for chemo on the 10th may, and hes still smiling , he wont be when i take him out in his wheelchair....LOL.where we waited so long for patient transport yesterday the nursing manager said we need to get you home as tim was so tired , they got us a taxi home to bolton, i am so greatful for this .....love and hugs...
Good morning...
thank goodness for the nhs walk in centre. its not somewhere that i want to be a regular but i know the names of all the nurses now!
fortunately it was a case of looking worse than it actually was. the nurse wasnt impressed with my trial day back at work leaving home at 6.30am, a busy day at work and getting home at 7pm. the tubigrip was a total mess of different fluids and soaking!
photos below actually showthe problems with tubi grip is that is slips and rucks up and has caused...
Hi im starting this blog with the Op, when i get round to it ill fill in the diagnoses before it. On Monday i had lumpectomy with full lymph node clearance for breast cancer. The operation went fine. The nightmare then started i went back onto a womans health ward with only 10 beds open in a busy hospital. I spent all night throwing up from morphine then some jumped up registrar pops up at the bottom of my bed 8 in the morning asking if he could discharge me? " oh yes please you prick, yes i do know...
HAS BEEN A LITTLE SILLY TODAY.
WENT TO WORK FOR A TRIAL DAY.
WHEN I GOT HOME I TOOK MY SHOES OFF AND SOCK AND THE TUBIGRIP IS SOAKED WITH LYMPH FLUID!!!! WAS A BUSY DAY AND DIDNT REALLY THINK ABOUT MY LEG... OK IT WAS ACHING BUT IT DOES WHEN IM RESTING IT TOO.
AM BACK ON THE DICLAFENIC....
4 DAYS TO GET OVER IT BUT I GOTTA TAKE THINGS MORE SENSIBLY I THINK!
BIT DEPRESSED....
:(
Will it ever end? Sal had a bad day again today with severe acid reflux. Doubled up again. She had told the doc and nurses that she is prone to acid reflux and has a regular prescription of Lansoprazole but they forgot to put it on her drugs sheet and the nurses can't give a drug if it is not on the sheet and it needs a doctor signature to go on the sheet. The upshot was that Sal never got any last night or this morning and this was the result. This afternoon the nurse gave her some regardless and...
