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its been a long hard 6 months since trica left us.dont like to think about her but i know i need to come to terms just dont kow how to
Found out I had a T1NOMO on left lateral border of my tongue last November, lost about a qtr of my tongue following laser surgery and 5 months on can speak (with a lisp) and swallow ok now. Would be interested to hear from anyone who has had this. I'm now being monitored for any signs of metstastic spread. Concerned about nausia bouts that started a couple of weeks ago and fatigue. Its so frustrating having so much to do and having to fight for the energy to complete the simplest of tasks. Strange...
i just joined had no idea how group works,so i justs said i was in pain with burns,could not reach my nurse and felt so low.solent lady holly harwich said phone help line i did, they told me cream to ask gp for and 4 days later i feel a little better not so sore thank you x
Well that wasn't what I expected! Radiotherapy simulator measurements and tattoos! hhhmmmm, takes much longer than you think - 40 minutes lying uncomfortably while no one speaks to you but keeps looking at your boob and calling measurements to one of the other 4 people in the room!!!!! Oh well its done now!
Devastating news today, cancer is back, 1 met in Liver & more in remaining Kidney, now starting SUTENT :~(
Hi just to say a big thank you to all those who contact me on this site or Facebook. So today I go for radiotheray measurements and receive my tattoos! treatment starts May2nd, bank holiday!
I must say that some of the links to this site from emails are a little tricky and so if I haven't got back to you blame it on technology!
take care all,
in love and light,
June Elaine
xxx
I was supposed to get my new obturator today but it wasnt made right so after an hour of trying i have to wait till next week!
I was feeling really good and quite positive and in my head had the idea of only radiotherapy at a local hospital, today i find i need chemo and rt and in London which means 4 hours in the car or a B&B.
I had a howling session in the car on the way home then decided i wasnt going to be a sad sack and was going to get on with the next two weeks until chemo starts.
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