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I did not think I would be back here. I actually thought I was cured. I was wrong. I saw my consultant last Thursday. she told me that the dead tissue they had found was In fact a tumour. four TURBT'S IN TEN MONTH'S. six week's of radiotherapy. all a waste of time. I agreed at the outset to have my bladder removed. now they are talking about salvage surgery. the removal of my bladder. If this had been done at the outset everything else would have been avoided. the cost of the treatment's I've endured...
The phlegm has definitely reduced a lot. I haven't had to use the spitting glass all night. It's still thickish in my mouth but more saliva like in texture.
I ordered some puréed and soft meals from Wiltshire farm foods yesterday that arrive on Thursday. I did try some fish pie on Sunday and soup yesterday but it was quite hard work.
I feel as though I have less energy this week than last week. Maybe because I'm not managing to eat as much.
Was quite down yesterday, something...
Had my op on the 1st came home on the 3rd am now in bed after doing too much yesterday cos I felt so "sharp" in the morning when I got up. My remaining drain has to be less than 50 mls in 24hrs before it can come out. Is there any one else out there similar to me. I had to stand my ground to get my immediate reconstruction at the risk of needing radiotherapy and further surgery (L nodal clearance) if the left side "calcifications" come back positive.
Even this major operation...
Hi. I'm Sarah and this is my first attempt at a blog. So please bear with me!
I think I'll start from the beginning.
After a rough 6 months at the beginning of 2013 (constant bleeding and belly pain) I was diagnosed with neauroendocrine carcinoma of the cervix. It's a rare and aggresive type of cancer and it had already spread to my pelvis and lymph glands. I was in for chemo straight away, followed by radiotherapy, more chemo, brachytherapy and finally more chemo.
By January this...
So I had my last of 30 sessions of radiotherapy a week ago last Friday. The past week has been a bit of a struggle, the worse thing being the sudden onset of the Phlegm monster. I can't believe how many toilet rolls I've got through. I took people's advice and found that the bi-carb mouth rinse seems to be best at getting the stuff out.
For a few days eating ( well drinking ensure) was tough because I didn't want to be swallowing the Phlegm, but it has definitely thinned out now, and...
I've decided to write about all of this. To put my thoughts down somewhere. To get them out of my head and onto a screen. Many people have told me that writing is the best form of therapy. I've always enjoyed writing, at school I would dream of being a writer, that dream didn't work out but here I am.
My life has changed so rapidly in the last 18 months. I feel as though I've grown into the adult I should be at this age. From my mental breakdown to the realisation that my Dad wouldn...
