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Last night I was kept awake ....something made me laugh for longer than I have in ages and it didn’t involve my story.
We were settling to sleep when lovely husband says ‘There’s something weird on my lower back, feels like a scab or something’
After much shuffling around he decided to get up and nip to check it out in the bathroom mirror.
I was almost asleep when the bedroom light went on and an anxious voice said ‘ Can you look, I really don’t know what it is and if I scratch...
I have to have ECX chemo with three cycles. The first cycle was tough - much harder than I expected. The first two days were ok then three days when all I could do was lie in bed and wait for it to pass. Nausea was bearable thanks to the meds. Eating little and often helped and eating Rich Tea biscuits and Polo mints! The CNS was great and advised me to stop the Capecitabine for a couple of days to let my body recover
After a week I started to feel better and was able to have a walk every day.
...5 weeks of radiotherapy started yesterday and today was first of 5 weekly doses of chemotherapy.
Each of these unknown new experiences is very daunting so I presented myself this morning with slightly wobbly legs.
As with all my experiences since this journey began, everyone I met was just lovely. The nurse who I was to spend most of the day with was great and explained everything she was about to do. She walked away to get various bits and bobs and promptly went flying over a very large yellow bucket...
Thank you for the support and advice. I'm feeling much stronger now and still another week to recover before next chemotherapy. I have taken BCD oil for somet months now as it really helps with MS. I have read that it can help with cancer too and it's well worth a try.
We must all be strong and I'm sure we will get though this. It's very hard but you are never on you own on this bumpy road.There is so much to live for and so much to look forward to.
Hi everyone.anyone eh!!.My so loved sis died in June this year 2018. Comfortably in St Leonard's hospital York.What an oasis in the life that all there either facing final time of life or in for respite care.Sis did manage to come home for a while and I had time with her as she slowly slept and held my hand. Finally the care needed was provided.After the disastrous time previously I was dreading needing help but this time it was good.We had night sitters and wonderful Macmillan nurses,oh the care...
After feeling so positive when I started chemotherapy, I was determined to keep this up. During the Taxol treatment I managed to stay reasonably upbeat apart from when I had a two week break because my bloods were wrong. I admit the side effects weren't pleasant but once I'd got used to feeling permanently tired and nauseous at times I think that I was very lucky when I hear of other people's experiences. I did have lots of tummy problems but usually medication solved my problems. I've also had various...
So, next week (4 November) I have an ultrasound scan of head and neck. That will be roughly one year on from the date that my chemoradiotherapy regime finished (28 November). The surgeon decided that he didn't want me to have a further PET CT (although I have only ever had the one when they first wanted to try to establish the extent of the spread last August), because it is more radiation and he thinks it can be avoided.
It's an odd situation and frankly I have no idea what might show up - hopefully...
Another song for your listening pleasure (?!)
A few months ago I borrowed a CD of a choir called Sine Nomine of music they sang while on tour in 1994 and 1995. On that CD is a song called "Take Me Up The Tyne" which has found its way into my heart. I love it's simplicity and the sense of home and belonging that it conveys. The singing style is so gentle. I listen to the song most days, during my breakfast-time singing in the kitchen, and really get a lot of enjoyment from trying to reproduce the...
As part of the planning process for radiotherapy with a low weekly dose of chemo for added flavour I was back at hospital mid week for a further scan and a hearing test. This was because I already have tinnitus, which is not a problem, but treatment can cause tinnitus and so it was decided that a baseline test might be sensible.
So off to Audiology. My husband sat with me while I was waiting to be called. We both noticed a loud whirring fan above our heads. There were 2 very large pillars which blocked...
It has been over 16 months now since I was first diagnosed with a GBM and 13 months since I had my second removal.
I have now just completed my 14th cycle of 5/23 of Chemo and my last MRI 3 weeks ago showed another slight reduction in the cavity of where the tumour was.
Even though I have my good and bad days with tiredness, I am feeling as good as I have in the last 12 months. I changed my diet and included foods rich in omega 3 fatty acids, fruit such as Papaya and gave up coffee and started drinking...
