It has been over 16 months now since I was first diagnosed with a GBM and 13 months since I had my second removal.
I have now just completed my 14th cycle of 5/23 of Chemo and my last MRI 3 weeks ago showed another slight reduction in the cavity of where the tumour was.
Even though I have my good and bad days with tiredness, I am feeling as good as I have in the last 12 months. I changed my diet and included foods rich in omega 3 fatty acids, fruit such as Papaya and gave up coffee and started drinking green tea with Papaya leaf. My Dex is now down to 3/4 of a mg and I was on 16 mg 12 months ago
When I did this my platelet levels went from 108 into the 140’s, I don’t know if my diet helped but my platelet level stayed in the 140’s for 6 months. They came down last cycle for the first time to 115
My neurosurgeon didn’t think I would make it to last Christmas with how I was 12 months ago and every 3 months I see him he asks if I am on magic mushrooms.
I keep fighting and reaching goals I set myself.
i know it will eventually beat me but I will get the most out of life until then.
Colin
