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I had my appointment with the consultant last week. She carried out a full check up using the ultrasound and everything seemed fine so far.
Lots of dates to enter into my diary:
Mid January - return to work.
February - bone scan and check up with oncologist.
May - mammogram and ultrasound 1 year post diagnosis.
I am looking forward to returning to work in the new year. Emotionally, I feel more in control than I did a few weeks ago. I realise there is no point even worrying...
Monday 12th December.
The last couple of days have been uneventful really, except that I had another fall out with the wig yesterday. I went out with it on for the first time in the morning, just to the co-op, it drove me absolutely crazy, the fringe was flopping all over, I wanted to rip it off in the shop. I didn't care what people thought, but I really didn't want to frighten the children in there. We got held up at the till as the person in front had a query over the price of something and...
So I was due for radiotherapy but it's been cancelled as my heart is too far to the left and will be damaged if I have radiotherapy. Met with my oncologist for my surprise appointment in whichever I was told that I would need to have ANC and try the deep breath radiotherapy but there was no guarantee that this wouldn't damage my heart either, so that's out of the question. The other option open to me is a mastectomy with ANC. So I have gone for this option but I didn't realise that there was so many...
Sarurday 10th December.
It was another ok day today, except for the bit when I tried to put my wig on, I just couldn't get it on right, I never asked the wig lady what to do with my ears, does the wig go behind or over my ears. I tightened the wig with the straps and tried again, still no joy, it looked so good when I tried it on when I had hair and with the wig lady. It was so disappointing. I wanted to cry, then I thought, hold on it's only a wig, there are bigger things going on in your life...
Well, that was eventful. I really am a 'sicky' person.
12 hours after my first (uneventful) FEC, I am back in hospital being hooked up to a drip and given IV anti-sickness medication. Over the course of the day, they fill me with a bag of fluid, another IV antisickness, two antisickness injections, and some tablets. I can barely eat and I know I am in trouble when the nurse insists on NHS-approved high-calorie chocolate mousse for pudding after my teatime honey on toast (I slept through...
Friday 9th December.
Today I decided to get rid of the mess on my head that used to be my lovely hair. Ever since I can remember people always commented on it, it was thick and wavy, reddish brown in colour. Until a few years ago I hated it, but recently I've grown to like my hair.
Today was the day it had to go, it was coming out in handfuls, so I went upstairs with the clippers and scissors and brushed what I could out and then decided to cut it first. I briefly thought maybe if it...
I’ve just had my latest set of scans (CT and MRI) on my bowel and liver.
And the results are……….(drum roll)… very good.
The tumours on my bowel and liver have had an excellent response to the chemo and targeted therapy I’ve been on. 4 sessions of Folfox and 9 sessions of Cetuximab. These haven’t been easy but I survived. The side effects have been difficult at times. I developed some nasty painful cracks on my feet, had varying degrees of nausea and I’m constantly...
Many ask how I am, some not really being sure what was wrong in the first place. I've been private for a reason, but do have a story. I have waited…. and paused, not knowing how to share properly. It's a very personal story due to the nature of my suffering, but I'm hoping someone else can takeaway encouragement if in a similar health situation.
This verse and many others helped me. Romans 5:3-5 ...but we rejoice in our sufferings, knowing that suffering produces endurance and...
Evening all,
Such a lot has happened since I last wrote to you all.
Uni has been keeping me busy, assignments to get in and lectures and seminars to attend. Unfortunately so has the Bastard.
Symptoms have worsened, the incontinence and pain particularly, so much so I ended up in A & E twice, most recently needing several doses of morphine along with Entonox before the pain was finally under control. I was transferred to a ward where I unfortunately had my worst encounter to date with the overstretched...
Thursday 8th December.
Thursday is bin day in our house. This bin day there has been rather a lot of my hair going into it.
It's been another okay day, nothing to write home about except my hair is falling out.
I went to the shops early and kept as far away from people as I could as this week my white cells are having a holiday. The lady at the post office was moaning about being fed up and not wanting to be at work, I did for one wicked moment think that I could make her feel...
