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I've only just worked out how to get back on here !!! I lost my darling paul on 20th Sep. He died peacefully in the Hospice with us all at his side . It was very unexpected and sudden but such a great relief for him . He had been in so much pain and everything started to go wrong . His last words to me was that he loved me very much so i will treasure that for ever. he is out of pain now and looking after us from above in peace. i miss him so much but in truth I had lost my Paul months ago bless...
hi ev1 havent been on for quiet some time,starte my chemo<taxol/carbo> on 1st october,although my primary cancer not found,secondary in te abdominal linning (peritoneal)they think primary may have been in ovary, so hence taxol/carbo regime,go again thursday for more chemo,hpe it will be easier this time,hair already gone,is ter anyone on same regime who can give me any tips on dealing with all this. thankyou for takeing time to read this,i hope u all in good spirits lots of hugs and love julie...
hey all
well mum got a phonecall from the hospital today which was going to arrange a pet scan for her after the news the other day, and to let her know what treatment the docs were planning for her now after their meeting today.
however.....mum came off the phone and burst into tears saying "they think i might not need anymore chemo".. turns out they THINK the area they are seeing on her recent scan is scar tissue and not active lymphoma, most of the consultants had agreed. so they are putting...
Hi, I'm Alice.
I'm Gail's pride and joy! I love my mum so much! Our saying was always:
"I love you more than science can prove!" and then we would laugh, kiss and hug. These days I miss the most. I am only 12 and 13 In 2 months. Me and my dad and my brother are sticking together through this the best that we can. I love my dad and mum. I am always known to look so much like my mum and that I have lovely hair.
Knowing that any day know I will be losing the most important thing...
My life at the moment feels like the film Groundhog Day, you know the one where yeo get up every morning and the same thing is happening all over again the only difference is its a year later. I was going over some of my blogs from last year and I am repeating myself.
Bert is feeling well at last his IV antibiotic has been stopped and we are waiting ( there's that word again) to see if his temp stays down.
Me on the other hand I have a kidney infection and Renal calculi. so lets hope the stones...
Its been a while since posting a blog. I went thro a stage of not wanting to think about doctors, hospitals and the C word anymore! Since August 09 we had a wonderful summer holiday. However it made me aware how I have slowed down and was unable to go out every day with my family to the parks due to exhaustion and shoulder pain. This stiffness has developed since a lump broke through in my left armpit and it is now very swollen. I cannot lift my arm above my head or behind and feel quite disabled...
My husband has been writing a blog since Camille's first diagnosis back in June. If you would like to read all his blogs back, please refer to www.burnserelli.com.
I will start to cut and paste his future blogs on here for reference.
Background information: My beautiful 2 year old daughter Camille was diagnosed with a large inoperable Grade II Ependymoma brain tumour, growing within her cerebellum, 4th ventricle and brain stem. She is undergoing a 12 month course of high dose 'baby brain'...
Since my last hospital visit, when they told me the chemo hadn't worked, I've been very down, and finding it hard to cope.
Things have come to a head now, and my fiance is moving out tonight.
He's more interested in smoking weed, and staying over at his friends house, than me.
We've been through all this before, talked about it etc, and nothing changes.
I need support. I need someone who will be there for me, not ignore me.
I understand he's finding me being ill hard, but he...
Well I a a clever girl. I have made it all the way into London and I must say it was worth the pain, I actually feel as if I have a purpose again instead of just being a blubbery mess.
Caught up on all the back log of emails and even managed to get ahead of myself to.
Everyone in the office was lovely when I walked in, lots of hugs and kisses and lots of "Oh we have missed you" (what they say when I am not there is anyones guess) and have been told by all that the area manager left a message that...
After a tough weekend with my daughter (advanced melanoma affecting her liver and bowel) being soooo sick we are off to meet the hospice doctor to get help with pain and sickness. I am worried it is the start of a slippery slope into not being treated and being told to tolerate it. She has another chemo booked but the sickness seems to be because of her liver being affected.
We had such high hopes of the PLX4032 announcements in the summer but although her genetic material has been away for testing...
