after a two day hospital admission they managed to get my daughter's sickness under control with a pump then she got some good nights sleep and felt better enough to ask for the pump to be removed. Not such a good day today and suddenly all the fears come back. Fantastic to have a gp visit at 30 minutes notice - never had that before, and the nurses have been great. Have to find a way to get this PLX 4032 - our only hope…
After a tough weekend with my daughter (advanced melanoma affecting her liver and bowel) being soooo sick we are off to meet the hospice doctor to get help with pain and sickness. I am worried it is the start of a slippery slope into not being treated and being told to tolerate it. She has another chemo booked but the sickness seems to be because of her liver being affected.
We had such high hopes of the PLX4032 announcements…
