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... without a snorkel or so it felt!
After such a quick diagnosis there was no time to worry or do any scary internet research. Looking back this was probably a good thing. Mr Bad Fairy and I shed a few tears and had no choice but to move on and deal with this new life that had been forced on us. Life goes on doesn't it? Being optimists we were determined to seek out, no matter how deeply they were buried, any tiny little positive moments along with any hint of something which might raise a giggle...
So on Monday…
…the plumber came and fitted new boiler and we’ll be able to light the fire tomorrow night. I had to spend the day in/on bed because it was the warmest place. Started watching the Gavin & Stacey boxed set I’d got for my birthday and mooched about the ‘net. Still can’t concentrate properly to read - find myself reading the same bit over and over again even if I’m enjoying the book.Still can’t concentrate properly to read - find myself...
Im here in the kitchen staring at this screen. harassing google with all the new words which have cropped up today.
After calling the hospital as my lovely man was too ill to talk yesterday and i havent recieved any texts from him today i was told his tumours are breaking down too fast. apparently theres problems. apparently the nurse couldnt tell me via the phone call i had made. so here i am waiting for them to call me back so they can confirm i am indeed Trevs partner and not some loon pretending...
Hi everyone. I just wanted to share some good news with you. I don't know if it's a coincidence or not, but since dad was prescribed steroids he has improved slightly. The improvement has meant he has been able to go out in his car a few times. In fact, he and Mum drove to Thursford to see the Christmas concert yesterday, the first proper outing they've had since the summer (and the under their own steam as well). Mum left him in his wheelchair while she went off to the ladies, and a lovely person...
After yesterday I just don't know what to say. Bert was so close to getting his transplant that his Chemo had been ordered, because of his low blood counts they took another bone marrow aspiration, the one 2 weeks ago told us he was in remission but this one told us he had relapsed again. The outcome was that there can be no transplant. To say we were devastated is an understatement.
We have an appointment tomorrow with Haematology to go over what happens next so I will keep you posted
Love...
After such brill news yesterday managed to drag myself into work today and stay until nearly 4 so major achivement.
Still on a high from yesterday then my mobile has just rung, the nurse from the oncology ward to give me two dates, next Tuesday for my pre chemo visit and then 1st treatment on 21st December, went a bit quiet and she asked if I was ok and when I said the oncologist had said treatment would start after xmas she said she had had the referral and my first treatment is in two weeks time...
We arrived at the Beatson to be greeted by lovely staff, room was ready and waiting for Bert. Tea and toast were served to both of us and we were left for a little while to get settled in.
Bloods taken Hickman line checked, cleaned and redressed. Apparently they have never seen a line like it everyone had to come and check it out, as there were concerns that it may not be in the right place.
X-ray and Echo all done. Blood results back Dr not happy as Bert is Neutropenic before he starts his chemo...
I wrote this blog a few weeks ago when I was really low, and Hugh (my husband was going through alot of pain.
Hugh and I hope that our story will help to make a difference, even if it is one person we can help or their family.
Please read and add you comments would really appreciate it.
http://cid-89ebd2cc3a018f63.spaces.live.com/blog/cns!89EBD2CC3A018F63!186.entry
