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"Your dad is in hospital with a massive infection, please call when you get this message" Not the most pleasant text I have ever received but in no way did I think that this would be the start of a week where once again my families life is turned upside down.
Less than an hour later, having abruptly left work I am sat in my dads chair, awaiting the return of my mum from the hospital, with the knowledge that my dad has Leukemia.
So many thoughts running through my head "How advanced...
So, in the name of lightening up conversations and not having to mention the depressing words that are cancer and tumours the rest of my life, i decided i should name the little lodger i had. Pretty much decided this from the first week of finding out. Im quirky that way, but it works for me! However, that plan became tricky when i discovered i had my primary one, two secondaries worth measuring and lots of clusters everywhere. Sounds like more of a collection than one simple naming task.
*sigh*...
Sooooo, Im the new mutant in the family.
Sole possessor of this crazy gene that causes FAP/Gardeners Syndrome.
Im thinking since i have this rogue gene, im due for my xmen type super powers to kick in at some point soon, whatever they may be. With my CEA numbers dropping so rapidly im thinking that could be part of my super powers - take that bowel cancer, and that!
Feeling rather unique and special to have yet another rare thing to add to my list of amazing genetics. Sometime in the future they will...
It's been a long time since I last posted. I am coping. We are worried about my Aunt, she is so full of anger and grief. She feels like the doctors, nurses and hospitals lied to her. She wants them to suffer too. I think they did all they could. We are still in grief, it's hard and I wish Grandma was still alive. I need to find someone to help her. She can't keep the anger going. She needs to let it go and cry. How can I help her?
Well now we know where we are splogging, I've been to see Sue my BC nurse today and got the results from my op. I'm confused, relieved anxious to get started and wishing it was all over all at once. Apperently I have muti- focal invasive ductal cancer combined with low to high grade DCIS, 10 out of 22 nodes removed tested postive for cancer cells and I'm both ER+ and HER2+ so out of the 5 possible cancer treatments I'll be getting 4 , I'm missing out on the radiotherapy!. I will be having...
Well my strange mood has gone – I’ve got over myself after a little chat with Rooby Booby (thanks Roobs ).
I am BRCA1+ and found this out a few weeks ago. Since then, I have had a breast MRI which is clear (phew) and today I spent first hour of my day in the company of my new consultant (still have the old one too – am a bit greedy like that) and now have a breast care nurse too. How lucky am I to have all these lovely people looking after me, and that’s why I’ve got over myself because...
I was diagnosed with CMML quite a while ago. My lovely haematologist, who I've been seeing since 2005, had warned it looked like things were pointing towards CMML but I can't honestly say I was that worried.
A bone marrow test was excrutiating. (It's worth knowing you can ask to be sedated.) According to various hospitals I have a high pain threshold. I thought I'd screamed the place down, but my boyfriend said I didn't utter a sound. (His palms were bleeding though!) Apparently...
I havn't been on here in a while as things were going well for my dad. Palliative radio and chemotherapy were working. However, he didn't finish the last round of chemo as his platelets were low and a transfusion didn't help. He now lives me, my husband and our 12yr old son. In the last month his health has deteriorated rapidly. The last week has been so DISTRESSING. He only gets out of bed to use bathroom, sleeps most of time, hardly eats and is in so much pain. I thought I could cope...
