Today is not a good day

1 minute read time.

"Your dad is in hospital with a massive infection, please call when you get this message" Not the most pleasant text I have ever received but in no way did I think that this would be the start of a week where once again my families life is turned upside down.

Less than an hour later, having abruptly left work I am sat in my dads chair, awaiting the return of my mum from the hospital, with the knowledge that my dad has Leukemia.

So many thoughts running through my head "How advanced is it?" What type of Leukemia is it?" "How bad will the treatment be?" but more than anything else the thought that is the hardest to even allow to pass through my racing mind "is my dear daddy going to die?"

It is now Thursday, 4 days since our worst fears were confirmed. The original diagnosis of APL, a much more treatable form of Leukemia has now been dismissed and he is on his way to a different hospital to begin treatment for AML, a far more serious form of the disease. I feel as if I have been hit by a train. The thogught of what my father is about to go through is tearing me apart. I am hoping that by writing this blog throughout the journey we are about to embark upon will be a cathartic release to the turmoil I am currently feeling.

I now have to go to leave to go to the hospital. Time to pull myself together, put my brave face on, and provide all the support and love that I can, when really all I want to do is curl up on my daddys lap, have him stroke my hair and tell me that it's all going to be alright....

 

Anonymous
  • FormerMember
    FormerMember

    There's no good way to get that kind of news, but a text is pretty harsh.

    Good luck to your father with his treatment, and to you and the rest of your family. You'll find the strength to deal with it - it's what people do - but when you need to let off steam, MacLand is always here.

    *hugs*

    - Hilary

  • FormerMember
    FormerMember

    Yep it's sooooo shitty when your workd is just blown apart! But you will now be strong and keep it together 'cos you simply have to for the rest of the family and mostly for your Dad. It's time now when your family will come together strong and full of love and support for each other.

    I wish your Dad the best of luck with his treatments and don't hesitate to share the ups and downs with us here and we will be waitng with reasurrance and hugs,

    Take care and here's your first big hug (((hug))))

    Jan xx

  • FormerMember
    FormerMember

    Hi Lou

    It's a terrible thing that's happening to you and your family but from experience I promise you will find the strength from somewhere to help your Dad and your family through the turmoil.  But what you must also do is make sure you surround yourself with very good friends who can help you to cope and give you strength and support to sustain you.  This is so important Lou.  Don't try to be all things to all men because you will crack under the strain of it all.

    The Mac Family is a tower of strength at times like this and always there if you need us.

    Sending you strength and hugs.

    Much love,

    Nin xxxx

  • FormerMember
    FormerMember

    Hi Lou,

    I just wanted to let you know that you are not alone as I am in such a similar situation to you. I was also told last week that my beloved stepdad has AML.

    It came completely out of the blue. He was perfectly fit and healthy when he went for his yearly GP check up/blood tests on Thursday 28th June. The next day he returned from work to a voicemail asking him to get to the GP surgery as soon as possible where they told him that his blood tests were abnormal and he should go to A&E immediately. Him and my mum spent the night at hospital whilst he underwent multiple tests before getting the diagnosis at 2am. The first I heard about it was when my mum called on Saturday morning and asked to speak to my husband. I am 7.5 months pregnant with my first baby so she needed to make sure he was aware of the devastating news she was about to tell me so he could be there to hold me. I didn't make it easy on my mum which I massively regret now. I was hysterical and sobbing and even vomited. It was absolutely the worst news I have ever been given. I can't comprehend what it must have been like for her. Just 24 hours previously she was about as happy as she could be with life - their first grandchild on the way and less than a year left until they both retired. It breaks my heart that their world has been torn apart like this.

    His WBC was relatively low (77) so the docs allowed him to go home for the weekend to get his head around the diagnosis before starting treatment on the Monday morning. Understandably he was in shock and didn't want to see anyone so him and mum just holed themselves up at home for those few days crying and talking and holding each other. Come Monday he was strong and positive and ready to face what lay ahead. I went with them whilst he got settled in his room for the next month or so and, like you, we had an initial diagnosis of APL which gave us some hope for a blissful few hours. Further results showed that it was infact 'classic AML' although the doctor tactfully said that it didn't really matter either way as the treatment for APL is a lot riskier to go through. His WBC had risen to 127 in just the two days he was at home so they started chemo immediately. 

    We are now on day 8 since treatment started and it does feel like it has gone surprisingly quickly. He has finished the daunorubicin and will complete the rest of the chemo on Friday. So far so good. He has not had any side effects at all apart from feeling a bit breathless. We do know this is crunch time though. His WBC is down to 2 so he has virtually no immunity whatsoever and tonight will be the first visit where I have to wear a mask and gown. We know infection is ineveitable. Let's just hope his body can handle it.

    Anyway, this is your blog and I didn't mean to hijack it it but suffice to say I have found this site an incredible help in the past week. It definitely fuels me with strength when I am wavering. I hope your dad is getting on ok with his treatment. It will be a long and rocky road but here are lots of us on it to hold each other's hand.

    Lisa x

  • FormerMember
    FormerMember

    Hi Lisa,

    I haven't been on here for a number of weeks, life has been so crazy that there just hasn't been time.

    So sorry to hear that you are going through the same thing as us, it's just the most horrific illness.

    How is your stepdad doing? I hope that he is coping well with the treatment and heis making good progress.

    I also guess that as you were 7.5 months pregnant when you wrote that you now have a baby, I hope that went well and the little one arrived safely.

    I have added you as a friend, and am here if you would like to chat at anytime,

    Lou x