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OK so my hubby started his chemo today.......6hr session....
When we went for his last appointment i specifically asked if i could be with him to support him...we got told "no......the nurses are there to look after him in the hospital....your job is to look after him at home".
My job? My job? It's not my job......it is my wish..he is my husband!
He has been at the hospital all day...and i have been sat at home crying all day at the thought of him going through this alone.....
...So. Peg fitting tomorrow and I get all the gory details on the chemo. Joy of joys. It also means a overnight stay for the PEG - not that this bothers me that much but who enjoys a night on the ward?
On another note, after yesterdays adventures with trying to eat normal food I have, possibly as a direct result, suffered with constant indigestion today. Everything has repeated on me and I have had heartburn all day. Gaviscon has been my friend. My friend that tastes disgusting. Well, that is one problem...
As the dreaded treatments draw ever closer I find myself making unexpected progress. I continued to try and find things I could eat, things to practice with. At home alone is a good time to attempt this, I can get into a mess or spit things out without getting any comments from children or generally just grossing people out.
To this end I went to the shops after the morning school run. My original intention was to (apart from getting the kids dinner for today) just stock on up some yoghurts and the...
I find myself wondering how some ideas have gotten fixed in my head. Rather like the idea that I had to predominately use one side of my mouth to eat and drink over the other AND how on earth I managed to do this with the wrong side. Thinking back on it there were only a few occasions that lead me to have problems swallowing water (once I was properly allowed to try) at the hospital. I was, I am fairly sure, doing this with the side of my mouth with the graft in, in other words where the tumour was...
I have pushed myself a bit further again today, we went out this morning and took the youngest two out down town. I braved the barbers to get my hair cut figuring that it would be my last chance before starting the treatments (and then I would most likely not feel like it). I felt a bit less self concious about being out and about today, not sure why. Perhaps I am accepting the scars and the way I sound a little more.
It did wear me out a bit, not sure why, I ended up sitting in the car whilst the...
Hallo again!
I'm one of those people who has lifelong problems with certain drugs and foods. Mostly, my anaphylaxes (which is a severe form of allergy which is life-threatening therefore I have to avoid certain drugs) are fairly common; things like Penicillin and Elastoplast. But, unfortunately for me, I'm also anaphylactically allergic to Beta-Lactems and Cephalosporins (both antibiotics which are vaguely related to the Penicillin family tree) as well as various other things.
However...
Last July me and mine moved from the home I'd been at for 16 years to a pretty little 'forever' home just out of town. The home had it all . . the only obvious drawback in these environmental times being storage heating and an open fire as opposed to nice clean controlable (2 ll's?)gas.
Our 2 year plan was to save and get central heating. In under 6 months cancer got us.
Not had chance to 'integrate' .
Husband is half way through 4th chemo of oxaliplatin and capec. Today...
Well hubby starts treatment on 23rd May.....the day after my birthday......not that i feel like celebrating....
It seems so surreal....he seems so well right now u wouldnt even know there is a monster eating him up inside........he is fit.......active.....and still my carer........in less than a week.....the world if gonna flip so badly.........we just dont know how to cope....
Well not been posting for a few days. I have been feeling very good this week no sickness at all, no fatigue, pretty much back to normal. I have spent the week Woking away in the garden, and taking he dogs for long walks, 2hours at a time, much to there distress.
I still have a week and a bit until the next chemo, feeling as good as I do makes me feel like a fake sometimes, especially as I'm not working at docs insistence.
I know Lou was doing her second set of chemo, i...
