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i haven’t been here much. Have been busy with my study and calling mum every day
to cheer her up. Also, it is Chinese New Year, busy cooking nice food for the
two. Since i came here, don’t really celebrate Chinese New Year anymore. I don’t
really keen on Christmas either. Not because i don’t like the holiday and
family gathering. I just really dislike the drinking business. I have grown up
in a culture that alcohol only for celebration usage, its icing on the cake. In
China, there...
Another month has begun. It is less dark now except under heavy rain. Today I managed to do some useful work in the garden the first for many weeks. All at ground level, but I was able to use a saw and long-armed secateurs to good effect to prune a large buddleia bush. Next task will be to use the shredder and reduce it all to small pieces for compost.
My pelvic pains continue to improve on abiraterone. The clinic has advised me to stay on injections of tramerin (decapeptyl) as well as abiraterone...
In my last blog entry detailing my background, I completely forgot to mention that the pelvic radiotherapy first time around damaged my hips, leading to my having to have both hips replaced, 12 and 16 months after treatment respectively. You would think I'd remember this, wouldn't you? Blame chemo brain! And also the fact that I was very lucky and both operations and recoveries were problem-free. But it's an interesting point that radiotherapy damages bones. Apparently it can lead to what...
Husband made a small fart saturday morning 18th january, 2 days after stoma reversal. And was discharged cos the beds on ward were needed.
To be fair the A & E had a busy night. But there was a wanderer in the bay and my hubby was the most ablest of the 6 beds and the nurses were short handed. G in the end bed got told to sit on it and leave catheter alone. Might have taken my man half hour to get to the end bed but the other 3 coherent guys used the threat anyway.
So hubby came home saturday...
This blog has been a long time coming. I've been roaming around this site, making the odd comment in the anal cancer (AC) group and in the incurable cancer group, but don't feel I quite belong in either, hence my decision to start a blog. The people in the anal cancer group are all going through treatment the first time around, so I don't feel I'm really much help to them because my treatment failed. So then I searched for people with metastatic AC and found two, including the very...
Dad is now in hospital again for the third time. He was taken in as he'd had a fall and the Mac nurse was quite concerned about him. He was taken to a super palliative care unit which is part of our main Emergency hospital. The care he received there has been amazing. The physical surroundings were like a hotel and the staff were well informed and put us at our ease. However he has now been transferred to our local hospital and it is like going from the Hilton to a Travelodge! The standard of care...
After two difficult days where my symptoms seemed to get worse things generally are much better today.
The pains in my right pelvis and leg had forced me to go back to using one crutch, on the left side, for walking outside the house. This was a step backwards as I had recently given up both crutches and was looking forward to longer walks to get fit again. Also, after starting the abiraterone about 3 weeks ago, the pelvic pain generally and my night frequency with difficulty both seemed to be much...
I have been wallowing In self pity for two week's now. my cancer Is not terminal. I can and will be cured. I am a great fan of medieval history and have decided to face this "dragon" I will fight. I will don my armour and mount my mighty Destrier and with my lance and sword I will fight you. I no longer fear you. I am Pagan. and I have my god's at my side. I take my ancestor's name "Saluayne" and carry It Into battle against you. If I should die It will be with my sword In my hand and my lance In...
My follow up with the consultant involved regular blood tests to monitor the PSA level. My initial appointment in August 2005, showed the reading was <0.1, too small to register. Every six months, a blood test confirmed the reading, until 2012, when a reading of 0.1 showed that there was some sort of activity. The next two readings stayed at 0.1 then it rose to 0.2. The consultants started to talk about radio therapy as an option, but I preferred to ‘watch and wait’, despite their insistence. In...
