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Didn't have too bad a night last night. Still waking up every 3 hours to take my various medicines, and dealing with the dry mouth/ saliva issues but am getting back to sleep very quickly. The Dr had said I would need to increase the oramorph up to 5ml this week, but I'm still getting by on 2.5ml, along with the Paracetomol and voltorol.
I went into work yesterday, by train, and ended up having to walk back to the train station because the bus was full. By the time I got home I was shattered...
The weekend seems to have been a good break, although the skin on my cheek/ neck is still very tingley.
It was really tough getting the mouth piece in today, and the fit of the mask is quite tight, but I can just about put up with it.
Saw the registrar rather than the consultant today with the nurse and the dietician. I still weigh the same which really surprised me when I think about how much rubbish I was eating before and now I'm just limited to the ensure. They clearly are packed with everything...
My wife is my carer, we have been married just three years when I got my diagnosis. We asked no one, no one at all for help. However a representative of macmillan came forward and offered support, guidance and help. My condition deteriated to include kidney failure, pneumonia and a collapsed lung. This was all treated in a hospital ward. While there the macmillan representative called by for perhaps 2 minutes. While she was there I explained that my wifes 82 year old mother had had a mastectomy the...
After finally getting some info of some use from special I think I've persuaded M to complete the chemo course, basically because it's the right way to go and I can't be bothered with going through this again because he didn't have all the rounds.
So I actually managed to speak to special this morning and what an eye opener that was. Out of a twenty minute conversation I think 15 of them were spent with me teaching her about psychology of patients and how to not steam roller people...
I think its all just starting to hit me and now not sure what to do with the emotions and what to do with myself.
Just wondering if anyone is/has gone through the same process of finding out what is right activity levels for them and any tips on how to do this.
Well last week I couldnt see myself making it into week 4 but I am more mentally prepared for it. I still have a mouth full of sores and ulcers, and the saliva has definately thickened up and become cloudy. I have a complicated drug taking routine which sees me alternating between paracetamol and diflofenac every 3.2 hours, with a 2 to 3 ml of oramorph every 4 hours. It does allow me to get some sleep but I still wake up every couple of hours and need to clear my mouth out. That's where the Caphopsol...
I was told by my consultant a few month's ago that I would most probably end up Impotent. well tonight I did some thing I thought I would never do. but first some back ground. I had been worried about Impotency and It has been well over a year since any Intimacy between myself and my wife has taken place " she Is afraid of becoming radio active" because of the radio therapy. It was the same when I had the defib put Into my chest. "she was worried about being electrocuted"... ...
