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Hello dear readers,
I guess it's time I updated you. We've been busy but not in a good way. I stayed in the hospice for 6 weeks in the end. Warning: It's a long one......
Whilst I was there I was eating my breakfast one morning when I suddenly felt very wet. I am incontinent so I thought I'd just check all was ok. I was very much not ok, the wetness was blood and lots of it. I just panicked. It was pouring out, I pulled the emergency cord and then thoughts of dying rushed through...
This whole experience is still not completely real to me but really think my thoughts now will be helpful to me at some point down the line, this had come from nowhere! I have had sciatica pain for a few weeks and whilst out for my birthday with my partner and sons 14 and 8 trying on wedding shoes - we are supposed to be getting married at the end of July! I noticed my foot had no feeling the boys dragged me on to lunch and later whilst peeing I noticed I didn't know I had stopped as the toilets...
It's very nearly six months since I started on Rucaparib. In that time, the drug has been licensed for use in the US and now has a trade name, Rubraca. There's gradually more information around and it seems like my experience of three to four months of hideous fatigue, mild nausea and a disgusting taste in my mouth is pretty normal.
I'm now at the stage that I can tell women coming along behind me to stick with it - the fatigue will pass. What a difference six months makes.
That's because...
I’m going to kick start this portion with a picture of me in a tree.
This was taken Christmas Day at Waverley Abbey. Past Gerry doesn’t know it yet but she is soon going to miss sitting comfortably. You enjoy that perch Past Gerry. Revel in the Christmassy moment.
Three days after the picture was taken (and luckily because I can count I make that the 28th December) another letter landed on my doormat. Future Gerry will get used to these. It had on it a medical stamp (Future Gerry will...
Hi my name is Pete and I have had my prostate removed and now I'm in the middle of 6 weeks intense radiotherapy. I am 55 years old and very alone with all of this. My kids are at an age where even though they support me they are barely around. I live on my own and have recently lost my best friends support . Her mum died of cancer back in August and she is finding all this too much and has backed away after promising to stand by me. So i feel like I have lost the closest person whom i used to be...
It’s been a while since I last posted in my blog so apologies if you were reading these posts and were wanting more! Just over three weeks ago, I was getting ready to go in to have The Big Op and was singing ‘bye bye Miss American Pie’ except in this case Miss American Pie was my cervix.
Well I can say that I am now sans-cervix. Well done me and the entire surgical team. Well mainly ‘well done surgical team’ as they did all the work whilst I just lay there. I’ll update...
My life was going good til I got this news.
Let me start by saying I'm only 29 and I have 4 beautiful children, my life tuned upside down when I did a pregnancy test because I was gaining weight an my periods had been absent for 2 months. I did 3 tests and they came bk positive. I was over the moon as I thought this would change my life forever but it turned out I was wrong. After a few days I started bleeding heavily. I went to the hospital and had countless blood tests and scans before they...
This post explains the "singing" part of the blog title.
When I received my terminal diagnosis (1 to 10 years) in May 2015 I think I reacted like a lot of people. I felt my life was over, as if I was as good as dead. My oncologist saw this in me and suggested I go on one of the Odyssey weeks that run a few times a year. I had a look at the Odyssey website and confirmed I would like to have my name put forward as a participant.
In September 2015 I went on the Odyssey week. It was life-changing...
Thursday 4th May 2017.
Well it's been a while since I've blogged. Not a lot has happened really except that I've been very busy work wise with our holiday business with the Easter holidays and bank holiday, also I've had both daughters and partners staying over the last month and of course my gorgeous grandson. It's been lovely because it's taken my mind off things.
On 28th April I had my final results appointment with my surgeon, she had a big smile on her face when...
I was asked my opinion on pain on another blog post, in one of the comments - and I thought that the reply warranted its own post. So, here we are.
Pain, sucks.
It's really that simple, and in my own opinion, I'd say it's the worst thing about this disease when it's all looked at as a whole. For myself, the pain is what's stopping me from; going out and doing things, cleaning my house, enjoying things when I am out, working, baking, gardening, performing, etc. If I didn't have the pain then I'd...
