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hi all please excuse my little rant , i am 44 and am feeling 94, just had my 4th cycle of taxol/carbo last week, and feel absolutly rubbish terribe pain from hips down numbness in hands and feet unable to walk more thana few steps without my llegs feling like jelly im normally a very positive person but i just feel like packing it all in curing up in a ball and just giving up,is this normal to feel this way or am i just being a big baby, thankyou 4 listening love n hugs to you all julie
My apologies to people who have been following my blog.
Dad is still bumbling along in the hospice slowly getting worse, there is a chance he may get home for christmas. He is basically stopping eating just now, he is like my 3 year old grandson when I ask him why he didnt eat his veg. Its the highlight of my day asking dad what he had for tea that evening and what it was like, I have had "how they expect anyone to survive on that", "it was shocking even the nurses said it didnt look nice" my favourite...
We lost our dear mum in the early hours of this morning. Almost 12 months after being diagnosed. She had all of her family round her and she eventually slipped away. I know she is with the angels now and that is some comfort at this time. This site has been a great source of support for me.
Take care everyonexxx
I've just read through The Bad Fairy's blog and, as I happen to be married to said fairy, I thought I should give another angle from the 'staff' at home (Please don't tell her I was very impressed otherwise I might need to buy her new, slightly larger, hats!). I understand now that a number of users join in and read posts as family and friends of cancer patients to gain an insight into what happens in this complicated world so I hope this blog might prove to be just as relevant but...
The appointment at the Haematology clinic went pretty much as expected. Bert is to have no further treatment. No more Chemo. No Chemo tablets. From here on is it will be palliative care only. Maintanence treatment will include Prophylactic antibiotics, anti fungals and antivirals. Blood Transfusions, Platelet transfusions when required.
We are still in shock I feel like someone looking in from the outside and it is all just a dream.
We have been given all the Hospice information Bert has had a...
...... and I wasn't ready to part company with them!
No, I wasn't about to join the local rugby team, not even the ladies one! This is the story of the hospital's one and only attempt to perform an endoscopy on me. Somehow I don't think they'll bother trying again!!
It has to be said the hospital porter was lovely, very chatty and cheerful as we whizzed along the corridors. On arrival in the sparkling new endoscopy suite the welcoming committee were nice and cheerful too. Lots...
…... Or face the wrath of the Bad Fairy!! Yes it’s December and that means Christmas (no grumbling at the back there please!). Wednesday saw me being chauffeured to the hospital, nothing exciting just some Bonio meds (Bisphosphonates) and I couldn’t believe how many houses had their Christmas trees set up in their front windows. Now call me a scrooge if you must but isn't it a bit early? Particularly when you think of the disastrous consequences of having a Christmas tree...
….about cancer. How do we do it? It’s hard enough sometimes talking to adults and explaining things but children are a completely different kettle of fish. This isn’t a text book way of talking to children when a parent has cancer, this is just our experience. Master and Miss Bad Fairy are eight and seven. We started off explaining that things had gone wrong in my liver, as that was the obvious bit, what with me being all yellow. Children are little sponges and before long...
..... and I didn't touch it, honest!!
It would never have won any prizes or been held up as an example of perfection but I was rather attached to it. Maybe I should have paid it more attention. Lavished some time and effort to lift its self esteem. To be honest it did always look a bit like the poor cousin and never as grand or imposing as its near neighbours.
Anyway it's gone now, superglue and bodge tape won't make any difference. Yes, today I said goodbye to my little toe nail. It's a good...
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