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well so much for my consutation, after waiting another 4 months my consultant went off sick, ok he's got a stand in, who doesnt know my name and couldnt read my notes quick enough, so another wham bang thank you mam your 5 minutes are up,theres the door,see you in 4 months. which does not help the other people,prosthetics and dentistry,who are on the side line waiting to get started on me again, it doesnt help me being in limbo or trying to explain to the clowns in beurocracy or the people chasers...
I am looking after my dad he got diagnosed in nov 09 with bowel cancer, they removed the tumor but there were still cancer cells.....so he started chemo, then got told in march that the cancer had spread to his liver........he is kinda doing ok, had a blood transfusion yesterday because he is now anaemic, this made him feel better.
I am worried that i should be doing more or i am not asking the right questions or being assertive enough. My dad is divorced, so i have been going with him to appointments...
Hello to all, new bed is great and last week was so busy I was really glad to get into it.
CAB adviser helped with DLA form and I'm not thick by any means but was very happy she filled it in as I would'nt have ticked half of the boxes(didn't think they applied to me) but after she explained I could see what she meant, so now just have to wait and see.
McMillan pain nurse came on Thursday and she's changed my Zomorph for Oxycontin and Sevredol for Oxynorm. Not taking them yet as not...
I'm back home now and have just been to the hospital to see Dad taking him pressies and photo's, his treatment seems to be going okay he was on his last bag whilst i was there 
He looks completely worn out and was very shaky but said he felt ok 
, I have had a fantastic weeks holiday with hubby and the kids but still had dad in my head constantly 
i feel much better now that i have seen him. Hope you are all well 
well i started today knowing it would be very sad, but also happy , for those of you that dont know ju managed a boys footy , he started at under 8 S, they are all now 12, same boys you move up with them, i was also involved too, anyway a few days before ju died they only went and won the league , unbelievable , well their was not a dry eye anywhere, on the pitch ,all kids ,parents coaches stand in manager, aand here where i was with ju, his face was a picture , and yes tears here too, well then...
Well thats it my las rt yesterday! feel really ill today my chest and neck look as if someone has thrown a pan full of water at it!! feels like it too!!! but i am hopeful it will ease off in a few weeks !! they say the side effects will last for a few weeks too i am then to have a break before the pet scan to see what the chemo and rt has done !! i am off on a well deserved hliday july 9th for two weeks!! hop my hair has ngrown a bit by then !!! hope everyone is as weel as you can be xxxx
Last Saturday woke up feeling fine but within an hour had the horrible shakes and the odd feeling which i recognise has a high temperature trying frantically to fine my themonitor which i was told to always keep handy but after a frantic search could not find, phoning nhs help line have to say not much help, and feeling more and more poorly only having my youngest son here tried to phone my team at addenbrookes then i remembered the purple card with my ward number so phoned them and they said phone...
My dad has throat and lung cancer has started his chemo ,constantly spitting up saliva and having trouble eating pretty much anything hes been given these milkshake drinks but he even finds them to thick to drink even waterd down .He can still put up a good argument and when i mention he might need stay in hospital if he dosent start eating more he just dosent want to know ,i know its hard for him to eat but if he cant i think the hospital is the best place even if its just for a week so they can...
