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Hi all,
I saw my lovely consultant today for my 3 monthly check. My CA125 has risen from 19 (which was right after finishing chemo), to 71. I have been feeling quite well, apart from muscle pain in my legs, a legacy from the Taxol, but was prepared for a rise, such is the nature of this disease.
My consultant was going to request a scan for me at the end of June, whether the CA125 had risen or not. This is because I am on "active surveillance" which I find very reassuring. I am quite...
Today's entry is a discussion of why I've not been sleeping very well recently
http://veryyoungwidow.blogspot.com/2011/05/sleepless-in-coventry.html
Thank you everyone who takes the time to read it :)
I had my oncology review on Friday, and following low blood counts, there has been a change in my chemo regime. The IV drug (Oxaliplatin - nasty side effects) has been cancelled and I proceed with oral chemo only (Capecitibine - very few side effects for me). If my blood counts continue to be low then the whole lot may now be cancelled.
But for now - after one cycle of capecitibine only - my bloods have recovered to an acceptable level. I picked up my tablets for the next cycle this morning (cycle...
Morning all
I have had to go back to work today after last week set back with my mom, its was hard leaving her today I must admit, but my auntie popping round sometime this morning to spend a bit of time with her.
She 's seems more like her old self today she ate really well yesterday she had a sunday lunch whoooooooowooooo. This was first meal she's had for at least 3 wks so fingers crossed things are on the up again.
I just hope she copes well by herself
Lisa
hi Ive had mantle cell for 10 years now but sadly there is no more treatment they can give me so time is now short , but i still wont give up I'm now trying to increase my blood and platelets with herbal remedy's , I'm also taking Turkey tail mushroom capsules which do help to keep the tumors away if anyone can tell me how to produce blood or platelets i would be grateful
What a rocky ride it has been so far, it all started when my lovely man started to have blackouts.
Friday the 28th January was the day he and I started the journey, this was the day he frightened me half to death with a seizure. He said he thought he had blacked out a few times previously but nobody had witnessed them...
Since that date after numerous tests on the 1st March 2011 he was diagnosed with a benign brain tumour. He then went on to have further tests which resulted in brain surgery on...
Now that my husband's treatment for leukemia is completed and we have been told he is in remission, my next hurdle is dealing with my mum who has dementia which is getting worse by the day.
Sometimes I wonder if physical problems are easier to cope with - there is treatment, it works or it doesn't but the person is still there - with dementia the person you love is no longer there in mind although the body is.
This is going to be a much more painful and harder struggle than Paul's AML and...
hi everyone just a little update to say my ronay ran the race for life yesterday it was so emotional and i felt everyone there was running for all of us i just burst into floods of tears when we were waiting at the finishing line im so proud of her and now im determined im going to do it as well next year and hopefully will be well enough to do the midnight walk in october as well so would be glad to know if anyone else would be willing to do it with me id be so glad to meet you all there unfortunately...
morning all
I woke early this morning yet again can't get past 5.00 oclock for some reason. thinking about lots of things today. The results of my mom's scan on thursday every time I think about it I feel sick . Not sure if I should ask my sisiter to come with us or just to leave it to me and mom, My sister husband had some test for cancer too so she really is going though it at the moment.so I think it might just make things worse I will only end up worring about them both.
I'v got...
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