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Ok so never blogged before but feel I need to unload and get the feelings out there and out of my head.
Do you feel like you are going mad? I look around at people and life and think - I was normal a few weeks ago now I feel like I am in a fog!
The waiting and not knowing what the outcome will be is just so wearing. I find myself in all kinds of scenarios.
I am still waiting for further tests and have no diagnosis.
I would like to write an upbeat blog at some stage - but today I just feel crap...
Before work I washed my hair and quite a lot came out, and I was
annoyed at it ruining my new pixi crop than actually losing all my hair
lol! ;)
Into work again today, but only until 2 as had to go and have my tubes
flushed - doesn't that sound delightful? ;) - and as I tired I went
straight home, or rather, to pick up Deri from school. She is more
cuddly than usual I have noticed. I think in her little 6 year old way
she is concerned about her ol' mum :) Also, the school organised a trip...
Just had my second follow up with Ms Cohen in London, following my second plaque treatment . Little change to tumour and I I expresed confusion over the different info / advice / or rather lack of it. She very helpfully has e mailed me 2 articles. Pretty unconfortable reading but at least the facts are there. Not sure if I can post these anywhere for general info, otherwise happy to share these with anyone who asks.
Let me know x Take care all
Today started off well took Mo down the town to Jempsons for a cup of tea & a sausage roll its the first time Mos been out since she came home over a week ago.Had a lovely day
she was a bit tired after so we came home so Mo could rest.About 6.30pm Mo had a mini seizure,shaky legs,arms and torso,slight rocking from left to right lasted approx 15-20
mins it passed but she neglected to tell me!!The next thing I know Mos shouting at me from the bedroom to call 999 as another seizure happened...
Been a crap day today had to tell my mum & dad the "bad news" driving up from Morrisons and the bank,tears arrived whilst I was driving. Don't know why but the tears & emotions wash over you at the weirdest times,usually triggered by a thought from the "past" or worse from the "future",a song or just about anything.Tried to pull myself together before my mum opened the front door,didn't happen the "tears & emotions"washed over us yet again!...
Returned to Hurstwood Park today & got the results of brain biopsy,it wasn't good news at all. Mo has got a Grade iv astrocytic glioma (glioblastoma) a malignant aggressive cancerous brain tumour. Its inoperable and terminal,I hate that word!!
Radiotherapy is the only treatment available at present,every other day for two weeks hopefully it will control the growth and alleviate the symptoms,best possible scenario shrink the bastard (unlikely though!).Radiotherapy is being used to increase...
I havent blogged for ages, last time I came on I wrote a post and it disappeared and I really could not be bothered to write it all again!! So things have been going very well for me as always. The cancer is still under control, I am still just on Herceptin and the best bit of all is I am FINALLY getting my breast reconstruction tomorrow!! I decided on the advice of some very special people in my life to give it one more try and it definately paid off. I am going in at 7am tomorrow and at some point...
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