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Well, we finally made it to see the Oncologist yesterday. It was a very positive experience albeit nealry nine weeks since diagnosis. The recent scans confirmed a Carcinoid Tumour with one small secondary in the liver. Blood and urine tests showed that the tumour, which is grade I, is only releasing a small amount of hormones, which is good. The even better news is that Pat will initially be treated with injection therapy and the consultant did not feel Chemo was needed. The question of surgery will...
Had a mixed holiday.....some good and some bad. I found Singapore a tad uninteresting. By the time we reached Cairns I had picked up a virus (probably from the aeroplane air conditioning) and the humidity and heat in the Daintree rain forest didn't help. It was a good experience going to the doctors surgery which was 2 huts joined by an open verrander which served as the waiting room......all very laid back and relaxed.....as you would expect from the aussies. The G.P was very nice but told me...
They managed to bring my kidney stent procedure forwards a couple of days - which is good as it might take a day or two for it to settle down.
This was my first ever general anaesthetic - "ouch that stings my h...ZZzzzzzz" and awake again 2 hours later. No grogginess, and no discomfort to start with...
I made the mistake that because I felt ok i didn't need any more pain killers - boy did I regret that. They gave me paracetamol whilst out cold and when that wore off my bits were in agony...
http://rayandmave.wordpress.com/ My Chemo has been sorted for the New year so I can enjoy xmas
After having chemo all this year, (and most of the last two), I have at last got my CA125 count down to 19, and the oncologist has said I can have a break from chemo until things go down hill again. My cruise for christmas is a present I never thought I'd get. Here's hoping these drugs have done their job and it stays under control for longer than the 3 months it normally stays away.
Stay positive and never give up hope.
A quick blog to update the past week and let you all know that my Dad died on Sunday 1.40am. But i'm not going to be morbid or upsetting. I don't think it's fair to express with too much detail the process of palliative care and my personal experiences; some of you on here may be going through as patient or carer the same experience and don't want the reminder thanks very much! And if you do, P.M. me to share.
All I want to say, is though the past few weeks have been tiring both physical...
I was diagnosed with Carcinoid Cancer in March 2010. I had it in 2004 as well but had both tumors removed. My surgeon was 110% sure he got it all! Wrong! This time there is no chance of surgery, to many tumors. When I was diagnosed I was told I had 4 inoperable tumors between my right lung & my liver. I thought my life was over at that point. I decided to go to CTCA (Cancer Treatment Centers of America) for a 2nd opinion. There I had a PET Scan. This showed that I didn't have 4 tumors, I had 20 to...
The weekend after session 3 of FEC, On the positives I still have my hair, my teeth, ny gums and most of my stomach contents. However I'm incredibly tearful at anything and nothing. Many of my friends seem to have lost parents over the ast few months and so I am very luckyt to have 2 able and fighting fit parents who are taking care of thmselves and able to give me support via webcam and phone from 500 miles away. Children's nativity pays and toy services hve me bawling my eyes ot and last night...
It is two forty five - in the morning...and I am angry.
So... I have written and deleted everything I want to say - because my anger won't help me/my husband or anyone else - and I could get sued...
All I WILL say to any "professionals' reading this - treat the individual not the cancer.
Whatever cancer throws your way, we’re right there with you.
We’re here to provide physical, financial and emotional support.
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