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As I said in previous posts, I was advised not to work due to the environment I work in. It's starting to get to me now. I felt ok whilst Gail was off work even when it was due to her being unwell (flu). She went back to work on Monday and I have felt worse as each day passes, I don't know how I'll manage this for six months. I have never been off work in 37 years. I have been doing all the wee jobs that need done, worked in the garden, baked etc etc, but I feel myself getting...
Dad has been getting worse since last week and it's horrible to watch.
Today we had a meeting with the district nurse and Marie Curie to discuss his care package. The district nurse wanted to reduce the care he was getting, but us and the Marie Curie said that he still needed 24 hour care, She did push for the Marie Curie to cut down their night care from four nights to two. The care team will be in the rest of the time.
She also wanted Dad to consider going into a hospice for a few days so...
Well I've set this blog up - so I suppose I ought to get on to posting on it. I am very new to this online community. But since My dads diagnosis on the 2nd April 2013, I've spent a lot of time on here searching and trying to find more information from people who've actually been affected by this awful illness.
I think I am still in a state of shock after dad's diagnosis. The hardest thing is that he's been unwell for about 2 & 1/2 years and its taken until now for it to be identified...
Well yesterday was day ten of me first cycle. Prior to starting I was told by the doc that my immune system would be at its lowest on day ten, then heads back up the way prior to getting the next cycle.
I don't expect it to be like this throughout the six months, but, I feel really good healthy energetic. Back to the way I was before. I probably didn't realise that I was maybe a wee bit tired at times but that's gone, and I fell "normal" again.
Gail...
I have been through so much in the last year and know I got through because I had so much support and encouragement from everyone. I will be one year in remission on my birthday next month I'm still visiting the hospital a lot and working hard to try overcome the mental and physical scars of my cancer journey. For anyone newly diagnosed I would say don't give up hope try stay calm and don't Google till your head is calm! Eternally greatful to my medical teams, friends and workmates who...
Mum's funeral was yesterday and everything went according to plan. It made everything more final, she's really not here any more. Dad is not the man he used to be, his brain tumors are affecting his memory.
Before the funeral we were told that the carers would only be coming in during the night and to make his lunch and tea. Last Friday I went up to find him in the sitting room confused with his finger bleeding and all the upstairs windows open and he had know idea what had happened. The...
Does anyone know the final stages of medulloblastoma?My friend has a recurrent medulloblastoma which is terminal. She can barely walk and has suffered from a number of seizures when we thought she was breahting her last.She is now very weak with no shorterm memory.What more has she to sufffer before she dies.She is only 19.
