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Originally published 3/5/13
Not sure what to make of today, its been a odd sort of day. Tiredness has gotten at me again, not sure why, I was ok this morning – but this afternoon I have felt shattered. I’ve not done a massive amount, but nonetheless I have felt really tired.
This is one of those times that I hate having this damned cancer, I’m not in control. I do wonder if I am missing something from my diet – given the limited scope on the kinds of foods I can eat it wouldn’t...
Originally published 2/5/13
I was going to say "its funny, you know" but on second thoughts its not funny. I find I have good days and bad days, days when i feel positive and days when I don't.
Today has been more of the latter for some reason. I have felt tired, worn down, my shoulders and neck ache and I spent most of the morning half asleep in bed. This is not like me normally, but today something just told me to take it slow and easy. I didn't even go out for a walk, I did do the...
Originally published 1/5/13
Sometimes it is hard to find things to write, hard to actually process my feelings and get them onto paper. Well, not paper, pixels perhaps – but you know what I mean. Today I am somewhat conflicted, I still don’t thing that I have actually accepted and understood what it means to have this cancer thing going on. It’s almost like it is happening to someone else, the shock of the scale of the radio and chemotherapy they want to do next was so great that I think...
Originally published 30/4/13
I've had a relatively quiet day today, I'm still digesting the information about the next stage of treatment - the length and severity of it. I find I feel rather like I would rather not have it done, that I have already done my part, that too much is being asked. Of course I am going to do it, regardless, I simply cannot escape it or avoid it. Never in my life have I failed to face down something hard or unpleasant that needs to be done and I simply will not start now...
Originally published 29/4/13
Today has been a day of good and bad. Histology was in for my checkup with my consultant.
Good
I am, on paper at least, cancer free. The surgery worked, none of the tumour was left behind in my tongue and they had some margin of healthy tissue all round. Of eighty lymph nodes removed from my neck, only four showed signs of cancer.
It has been caught in time.
Bad
The margins on part of the dissection of my tongue were too small, half a millimetre, to be entirely safe. Its...
Originally published 28/4/13
Today has been a nice quiet day, the sort of Sunday that seems to last for ever. Trouble is, it's not quiet for everyone. My poor missus has been busy, more so because I can't do as much as before.
It makes me feel damned useless, simply because my instincts are telling me that it should be me looking after her. Its not though, the damned cancer has made sure of that. I hate it for that, something else its taken from me. That's the worst part for me I think, the...
Originally published 27/4/13
Early entry today, its Saturday and Doctor Who night, so the whole family will be sitting down to enjoy Saturday evening who.
Today I have been sooo tired. Before you say it, yes obviously I totally over did it yesterday. Ho hum. Lesson learned? Probably not. Trouble is, I get tired like this and I get grumpy. I have been snappy with my lovely missus, to my burning shame I upset her this morning. I have shouted at the kids. Oh dear.
My wife thinks I'm not getting enough...
Originally published 26/4/13
My fight to get back to normality continues, I think I had a bit more success with it today though.
I went for a walk in the rain this morning, picked up a couple of bits at the local shop in the village and wandered back. I think this left me less tired than yesterday - honestly, I fail to understand why things that not three weeks ago I did all the time without getting tired or feeling a bit I'll are suddenly so damned hard. Walking up stairs without getting out of...
Originally published 25/4/13
Its been a nice day today, I went for a walk into the village and back in the sunshine - which was only slightly misconceived, I came back with a pleasant feeling of warm accomplishment which only later translated into a need to have a nap from sheer tiredness.
Today I have been mostly just trying to get back into a routine, doing odd little jobs like taking all my pre-operation pain medication back to the chemists (I'm not taking any pain control now, which compared...
Originally published 24/4/13
Finally. Made it home, over two weeks in hospital and finally I'm back.
Feels really good to be back, but I would like to take a moment to extol the people who cared for me in the hospital. They are the very best of people, if you ask me, working tirelessly to meet the needs of patients under their care. I don't care what anyone else says now, the NHS is worth every single penny that is spent on it if it filled with people such as these. The level of care and compassion...
