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Good news - liver tumour not seen on scan. Tumour in rectus muscle not mentioned on scan report (I still think I can feel it though).
Bad news - three little tumours in my right lung.
Appointment with oncologist. Three options. Do nothing (really??), referral to Dr Mark Middleton at Oxford to see if there are phase 1 trials - downside is that these are usually to determine tolerable doses and therefore could make me feel really ill, or referral to lung team to see if they would do ablation...
I'm pasting this from my profile as I don't want to type it all again, or go into detail of how I got to where I am.
I was diagnosed with bowel cancer in August 2007 when I was 45. I had chemo and radiotherapy (causing an early menopause) to shrink the tumour before it was removed in December 2007. I started chemo in Feb 2008. In January 2010 I was told I had a secondary tumour in each lung. One was removed in February and the other in March. I started chemo in June 2010. In December 2010...
Since my last post things are continuing to improve .... I am still on pain relief (paracetamol and ibuprofen) and my mouth is sore, but I re-introduced minty toothpaste earlier this week on the morning brush. I ate a beanburger which wasn't home made and there must have been some unexpected spices in there that irritated ..... it felt as though I had a huge ulcer at the back of my mouth (just behind my epiglottis) ...... Carrying on eating it was a very brave thing to do, but the next day I haven...
My PSA is steady at 2.9 on abiraterone and prednisolone but of course it could be lower. Days vary from fantastically well and active, (yesterday), to tired, wobbly as though drunk and weak legs, (today). I don't understand all this. The only constant is disturbed nights though length of time asleep does vary.
I know the mets are still there but nothing new has gone wrong recently. My urinary stream varies day to day and night to night although I take tamulosin regularly every morning. The oncology...
Well that was fun (not) taken though the hdc with stem cell transplant. A course of injections to boost my stem cells then a day of harvesting maybe two And then maybe my first cycle of hdc what unnerved me was if they think its worth it I may get another cycle and hopefully 3 Yikes ... First time i want more then one cycle of chemo
19/33 Tuesday 22 April: Weight 74.7 kilos. Had my usual weekly chat with Mitch. Told her about my niece’s new baby and my daughter expecting one in August. See, it’s not all about me. Everything ok with me, as far as I am concerned, although the tiredness each day when I get home is getting to me a little. No other major side effects except realising that, when I need to empty my bowels, I mustn’t delay. Also, I have found myself suddenly leaking into my tissue pad, without warning. A bit longer...
Just a short update today, as I'm not feeling too great. Had my 4th of 5 Mytomycin shots on Thursday, and started the 7th of 8 cycles of Capecitabine. My bloods must be fine, though I forgot to ask for the exact levels. The registrar I saw (yet another new one) said that I should have a scan after the last cycle of Cap and possibly before the last Myto. If the scan result is good, I may not even need that Myto. Timing is pretty tight though: I'm not sure when they are going to schedule the scan...
