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Hi everyone!
So I had my biopsy last month and the results were clear again woohoo!
Im having my Mirena moved next week so my partner and I can start trying for a baby! I’m so excited
Hopefully the Hyperplasia doesn’t return and I can conceive and carry without any problems
Ill keep you updated!
xx
Well yesterday was mums appointment with her oncologist to get some clarity after her hospital admission for fluid on the lung.
Before we went in we collected a form mum had had sent to her from HMRC about whether she was fit to go back to work, she had left with her consultant surgeon to fill in about her treatment etc. He had written she was due to be started on weekly chemotherapy and that the prognosis was poor but they would need to see how she responded to the new treatment. It knocked the...
Waiting for information is always hard and, for me, writing and talking about my fears and worries is therapeutic; but blogging about the things we've experienced also serves as a diary of sorts. Everything is documented and there to help me recollect things I need to, in caring for my husband. But, I also think it may help others who are facing similar experiences.
Last Friday, my Terry came home with some of the same sort of itching we used to see before he was diagnosed. HIs ankles were particularly...
Well hello,
I have not blogged for a bit as I decided to be selfish and enjoy some symptom free time, if you don't count the sheddinghair faster than a golden retriever. I managed to drive for 2 hours to my sister and join the girls of the family in my Neices hen party. So glad i did it. Then came back to ready myself for round 2!
Had the bloods. check. Remembered no micropore tape. check. ( I still have a scar on my arm from week one from the nastty tape lol.
Chemo day. I had reflexology for...
I rang the oncology department on Weds last week to chase up when mum would be seen by the consultant and we've now got an appointment this coming Wednesday. Not much longer to wait now to get to the bottom of what a going on. Mum saw her surgeon on Thurs last week in reference to her lymphodema and he put her on the urgent discussion list for the MDT meeting on Friday for them to talk through her results and possible next treatment etc so I'm hoping this will mean when we go on Weds there will be...
During surgery I had groin lymph nodes removed from both the offending right side and left. Latest news is that nothing showing from left side but 3 out of 11 nodes showing signs on the right side.
Chatting to youngest daughter and saying it seemed a bit brutal to take left lymph nodes out.
Her comment? ‘ Honestly Mum, if they had to call you back later to remove the left nodes you’d be gutted!’
It took her a while for the ‘penny to drop’ :/
After my surgery I seem to still be quite bloated and swollen in the lower abdomen. I did have lymph nodes removed on both sides so this is to be expected. But this morning in the shower I suddenly realised when I looked down I could actually see my feet!
What a sense of achievement this has brought to my day - totally ridiculous!
In other news - Macmillan Coffee Morning raised £210.30 which for a tiny village population is great.
So 2 things which made me smile today.
Hi all
Thought I should update as it has been a while.
The best news I can give is there is no news, nothing has really changed, just like normal life it keeps ticking away except there is an undercurrent that ebs through each day nothing tangible, I wouldn’t describe it as anxiety just an awareness of my fragility.
As a couple we have taken sometime for each other with days away, holidays are a struggle for me, I worry about going abroad and the lack in insurance, I also find the travelling...
I had a PET scan on Tuesday and had an anxious couple of days waiting for the results. Everything seems to be fine. Hallelujah! I also asked about my blood results as I hadn't received a copy. I had been worried that maybe they were not good and that's why they hadn't sent them to me. Tumour markers showed 2 (last time 1.8 and time before 1.6). Naturally, I see a worrying trend of them on the increase. The "normal" values should be 5 or less so I know that I'm worrying unnecessarily but I think that...
Final PET scheduled for next Thursday. Consult with Oncology next Friday
After Terry's 6th and final RCHOP treatment, we had a little rough time of it, as the fatigue was the worst. The day after his last treatment (3 weeks ago today), he immediately started to "drag". It was the worst recovery time he suffered through these past 5 months of chemo. Never really had much appetite or nausea through it all; but the fatigue, definitely, builds. It took him a good week and a half to start...
