Community News - Macmillan Online Community

UPDATED: Online Community downtime - Monday 5th December

UPDATE: Due to unforeseen circumstances, we have had to re-schedule our update for next Monday, 5th December. This means that the Community will be up and running as usual tomorrow. The site will be inaccessible between 1pm-7pm on Monday 5th December. We apologise for any inconvenience this may cause and if you have any questions, please do post in the comments section below. As users of our Online Community, we want to update you with some key information about some upcoming essential maintenance. On Monday 5th December we will be updating our Community to the latest version of the software we use to provide the platform. We’re doing this to ensure the site continues to run smoothly for our users. The update will also fix some technical issues, which we’ve talked about below. In order…

Ellen - Macmillan
When your parent has cancer: Bertrand’s story

Bertrand describes that he was at the pinnacle of his life when his papa was diagnosed with cancer. Faced with handling becoming a parent himself and navigating his papa’s incurable diagnosis, Bertrand has created a video about finding what he calls “The Grey Area.” A loved one’s cancer diagnosis can have a huge impact. It can be difficult to find the balance between taking care of yourself, your career and your family, alongside looking after your loved one who has been diagnosed. Bertrand felt he needed to navigate a new stage in his relationship with his parent. He needed to reconcile with needing his papa’s support and guidance, while supporting his papa too. “I wanted his guidance, but I didn’t want to bother him. As I felt that surely any issue I had was minor compared to what he…

Eliza -Online Community Team
Hysterectomy support from the Macmillan Online Community forums

A hysterectomy can be hard to deal with physically and emotionally. Our forum members can help you cope through shared hysterectomy experiences. Some members have been talking about total hysterectomy (sometimes known as a simple hysterectomy) where the surgeon removes the womb and cervix. Others are discussing radical hysterectomy where the surgeon also removes the upper part of the vagina, pelvic lymph nodes and tissue surrounding the womb and cervix. Whatever your experience, it can be really helpful to be able to talk to real people who have been through a hysterectomy. How our forum members support each other with hysterectomy When you are facing a hysterectomy and you’re not sure what to expect, you can chat things through here on the Community. Prior to surgery or hospital stay…

Steph - Online Community Team
Catching up with the Liver Cancer Forums for Liver Cancer Awareness Month

October is Liver Cancer Awareness Month . In this Community News Blog we will be catching up with the liver cancer forum and the secondary liver cancer forum on the Community to see what support has been shared during the run up to the month . The liver cancer forum and the secondary liver cancer forums are friendly online support groups for anyone with liver cancer, or for anyone supporting a loved one with liver cancer. Both forums are places where you can share your thoughts, worries and anything else you might be going through with people who have been there themselves. Support on diagnosis If you or your loved one has recently been diagnosed with liver cancer, it can be comforting to be able to speak to people in similar circumstances. "I was diagnosed with inoperable…

Steph - Online Community Team
Cybersecurity: Staying safe on the Community and beyond

Ever since the pandemic, the average number of people using the internet and being present online has increased significantly. Ofcom reported that on average, a person was online for more than 4 hours every day. Naturally, the number of cyberattacks have also increased. The BBC reported that there were around 6,000 fraud and scam cases related to the pandemic in general. It meant that there were more numbers online than before. As we’re trying to come back into some form of a normal routine, it’s important to make sure you’re aware of the risks that being online may entail and what you can do to protect yourself online. As the new year dawns on us in January, in this blog, we take a dive to see how you can help to protect yourself online on the Community and beyond to try and ensure you…

Syed - Macmillan
Wellbeing 'This or That' quiz

Which do you prefer? This or that? Below are some 'this or that' questions to help you understand what your preferred resting type may be, so you can try some of the suggestions in our Helping You Rest Better blog . To join in, select your preference out of the 2 options in each question by clicking the 'vote' button. The links at the bottom of the page will take you to the relevant information for your preferred rest type. This is not in any way medical advice for your physical or mental wellbeing, but a fun way to help you find ways to get better rest and maybe try something new. If you answered: Hot bath - you may find sensory rest to be helpful. Hot yoga - physical rest may be helpful. Meditation - s piritual rest and mental rest may be helpful. Journalling…

Megan- Online Community Team
Accessing the Online Community – Help with account creation and log-in problems

Creating an account Signing up for an Online Community account is usually very easy. You choose whether you want to sign in using an email address or a social media account, you provide a few security details, then you pick a public username. That’s it – you’re all set! Unfortunately, this being the internet, sometimes things go wrong. To save any confusion, it’s a good idea to see what the process looks like when things work as expected. You can either view the handy video below or read the illustrated instructions to learn more about the process. vimeo.com/.../885595769 NOTE: The descriptions and images featured in this guide refer to the Online Community website when using a computer or large screen device. We recommend accessing the website using a full computer or laptop when attempting…

Matthew - Online Community Team
Coffee, cake and catching up with the Community

Lots of us enjoy an occasional treat. Whatever you’re going through, it’s good to have something to look forward to. September is the month of the famous ‘ World’s Biggest Coffee Morning ’ where people all over the world get together whilst fundraising for Macmillan Cancer Support . In celebration of coffee mornings everywhere, in this Community News Blog we will be exploring the Community’s love of baking and getting together. What’s your favourite treat? Earlier in the year, Community member Mum started a baking thread, sharing a photo of their freshly baked chocolate mocha muffins. We thought they looked so delicious that we have used their image to accompany this blog. "I think a few people here like baking cakes and a few more perhaps like eating them and discussing…

Steph - Online Community Team
Living with Lymphoma- Yamour's shares her story with her mother Isaf.

Yamour and her mum, Isaf, talk in their Mother Tongue Turkish, about some of the issues and cultural stigmas they encountered when Yamour was diagnosed with stage 4 non-Hodgkin lymphoma when she was aged 21. . This video is part of Macmillan’s mother tongue project. (4 minutes and 49 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll to the end of this blog page. Transcript Yamour : In the early days after I got diagnosed with cancer my father would say, “No, daughter…

Megan- Online Community Team
"People are afraid to use the word cancer in our Community." - Nahida and Saddiya tell us more

Nahida & Saddiya speak in their Mother Tongue Sylheti, a dialect of Bengali, to talk about some of the cultural stigmas when faced with a cancer diagnosis. This video is part of Macmillan’s mother tongue project. (3 minutes and 54 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll see the 'Additional support information' section at the bottom of this page. Transcript Saddiya : People are afraid to use the word cancer in our Community. They immediately panic the moment…

Megan- Online Community Team
"I became a stage 4 lung cancer patient from an ordinary man overnight." - James shares his story

James and his wife Helen, talk in their Mother Tongue Cantonese to share some of the cultural stigmas and issues they faced when James was diagnosed with lung cancer. This video is part of Macmillan’s mother tongue project. (4 minutes and 38 seconds). We hope to feature different lived experiences here on the Online Community to represent different ethnic cultures and communities, so nobody feels they are facing cancer alone. Please see an English transcript written below. There are also English subtitles available when watching the video. For additional support information in other languages, scroll to the end of this blog page. Transcript James: Before I was diagnosed with lung cancer, I had no idea that cancers can actually be treatable. From my own experience, I learned…

Megan- Online Community Team
Coping with bereavement

Saying goodbye may always be a difficult moment. Sometimes, we may not want to say goodbye to friends after a lovely day out, other times we may use it prematurely to get out of an awkward situation. Then comes what some may class as the most difficult goodbye, the one where it’s time to say farewell to a loved one forever. The loving connections we make throughout our journey called life, be it our siblings, our friends, our loved ones and our children. It may become almost impossible to say goodbye when it’s their time. It can be a difficult thing to process. Realising that your loved one may not have long left. We may all eventually experience loss but in this blog, we will take a focus on the ways that members of the Community, may find helpful when coping with grief. Seeing a loved…

Syed - Macmillan