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Hello, I'm new. So new, that I don't have a firm diagnosis yet. I had a referral to gynae clinic about a wart-like growth I'd had for a while and both gp and I had written it off as a skin tag or wart. Fast forward about 4 years and it started feeling...
Hello I Was diagnosed with vulval cancer in 2020 when I turned 50 and had the tumour removed and also the lymph nodes removed both sides. Recovery was slow but the good news is the cancer was completely removed and no further treatment was needed ...
Hi. Just a quick hello. I found out yesterday I have Vulvar Cancer. Just my bloody luck to get one that’s super rare, and I’m only 45. Not sure of what’s to come, but I’m not relishing the fact that I’ll have to have surgery down there, but such is life...
Has anyone with Vulvar Cancer received immunotherapy(Keytruda) after chemo did not work and maxed out on radiation therapy. Did you get tested for PDL-1? If so, what was you test score? Thank you, Dream
Good morning, I have been having scans because of pain after weeing and everything appeared normal. My Dr has referred me to gynaecologist with suspected endometriosis and I have an appt on the 22nd November. However I have just discovered a round...
Hi ladies, I've had 2 operations first to remove the lump November 2021 and a 2nd in February to remove my lympnodes from both sides of my groin. Then chemo/radiotherapy in march that lasted 5 weeks. So it's bin around 4 months. So my question really...
Hello, I was diagnosed with VIN3 & HPV in 2017. I had a wide local excision and since then have gone back to the hospital every 6 months to be checked over. The last visit was in June this year. I have the worst itching in my vulva and around my anus...
3 years ago exactly I was diagnosed with anal cancer. Following my long and painful treatment of chemotherapy and radiotherapy I was left with radiation burns all around my back passage and what I thought my vagina. The ones on my vagina have grown bigger...
Hi, My nurse practitioner has been reviewing an odd lesion on the inside of my labia majora. It is a flat white patch (about 6mm but not a clear cut border) with a grey middle and a purple mark just outside of it. She gave me steroid cream for a while...
Hello I am aged 80, fit and active - swim, walk and travel regularly. I was diagnosed with EMPD on 1 July following a biopsy. Due to see the gynae/oncologist on 01 September. Options for consideration given at time of diagnosis - surgery, course of...
